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#28706 - 11/24/12 01:33 PM Acitretin
carmen carmen Offline

Registered: 11/24/12
Posts: 8
Has anyone tried Acitretin?? My 12 year old son has Lamellar Ichthyosis and the doctors has put him on this med. I am worried that it might stop his growth. Can anyone tell me more about this med.

#28708 - 11/25/12 01:19 PM Re: Acitretin [Re: carmen carmen]
Hearsay Offline


Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
If you do a search, there is a LOT of information about it. In short, there's a lot of controversy about using it in children because of the side effects. It can cause liver problems. One of the other types, Accutane (isotretinoin) is known to cause bone density problems. They all cause birth defects and have a several-year period between when you stop taking it and when it gets out of your system. For women, you can't get pregnant while on it or for 2-3 years after you stop taking it.

Here's a link with info about it:
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.

email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"


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