As frequently happens, news media tend to report on obscure potential research as the newest and next best thing, then they fade into oblivion. Who knows what happened to this, but as it's been 4 years, odds are that it never made it out of the lab.
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.
email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"