Hello,my name is Margie.My family and I are going to be.running at the Baltimore running festival,doing to.half marathon,to raise awareness and $$$ for First.My daughter has Harlequin Ichthyosis and I just really want to riase awareness theres so.many people I.meet on a daily basis.that have no.idea what she has!,So any donations or help.with this would.be awesome!