One thing that you need to know is that having ichthyosis will NEVER make you less than who you choose to be. Anyone that thinks you're unworthy of love or friendship because of your skin is someone you don't want to be friends with, either.
You're at a really rough age where a lot of your peers can be really shallow, petty, and at the same time think they know all there is to know about how the world works. I promise, it does get better!
Look into firstskinfoundation.org. They had a regional meeting in your area last June and coming up next June is the national conference in Denver. We have a LOT of teens attend the national meeting, and it might be worth coming for you. And even if you can't come, give them a call and they can find someone nearby that would be a good shoulder to lean on.
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.
email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"