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#2772 - 06/18/04 06:38 PM darier whites
Lynnnn Offline
Junior Member

Registered: 06/18/04
Posts: 1
Loc: papillion Ne 68046
Hello all, I am new to this board I am also new to the whole itchyosis diognosis. I have 4 children that have dariers they got it from their mother. I am their step mom.
I had no idea till about 3 days ago that it fell under Itchyosis. I found this and the other sight through a genetics councler at the Monroe Mire institute. I don't know if I spelled that right. Anyway I am trying to find others who have Dariers.I am also intrested in learning about the other types of Itchyosis and getting to know all of you.

Lynn

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#2773 - 06/19/04 02:29 AM Re: darier whites
Anonymous
Unregistered


Lynn,
I've only met one person with dariers and unfortunately she has moved out of my state and left me no forwarding address. Her name was Lucy Kjellerson if i remember correctly. Perhaps if you contacted FIRST they could give you a location on her. I think she moved to Colorado if that helps at all. Wish I could help you out a little more.
Keith.

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