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#2772 - 06/18/04 06:38 PM darier whites
Lynnnn Offline
Junior Member

Registered: 06/18/04
Posts: 1
Loc: papillion Ne 68046
Hello all, I am new to this board I am also new to the whole itchyosis diognosis. I have 4 children that have dariers they got it from their mother. I am their step mom.
I had no idea till about 3 days ago that it fell under Itchyosis. I found this and the other sight through a genetics councler at the Monroe Mire institute. I don't know if I spelled that right. Anyway I am trying to find others who have Dariers.I am also intrested in learning about the other types of Itchyosis and getting to know all of you.


#2773 - 06/19/04 02:29 AM Re: darier whites

I've only met one person with dariers and unfortunately she has moved out of my state and left me no forwarding address. Her name was Lucy Kjellerson if i remember correctly. Perhaps if you contacted FIRST they could give you a location on her. I think she moved to Colorado if that helps at all. Wish I could help you out a little more.


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