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#2745 - 05/24/04 06:10 PM New Member
Arwin Offline
Member

Registered: 05/24/04
Posts: 10
Loc: Scotland
Hi All,
Both me and my 7 year old son has the skin condition CBIE.

We come from the Highlands in Scotland, UK, and would dearly love to hear from others.

Hugs

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#2746 - 05/26/04 06:09 AM Re: New Member
Sofie Offline
Member

Registered: 07/22/01
Posts: 118
Loc: Switzerland / USA
Dear Arwin & Son

Welcome to this Bulletin Board! Hopefully you will find this Board as helpful and supportive as it is for us. People from all around the world with all types of Ichthyosis exchange experiences and encourage each other on this site. I am sure there are some with CBIE visiting this board too. There are several people from the UK as well. By the way, I think there is an Ichthyosis support group in the UK but unfortnately I do not know the website.
You might be interested in visiting the website of FIRST (Foundation for Ichthyosis and Related Skin Types). They have a bunch of information, recommendations for doctors and the like. www.scaliskin.org. Please do not hesitate to contact them if you have questions.

All the best,
Sofie

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