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#27392 - 02/03/11 09:24 PM Are my tips right?
Phobia Offline
Member

Registered: 11/15/07
Posts: 6
[font:Arial]Hey I made a kinda tip article about Ichthyosis with some everyday tips on living with it. I would love it if others with Ichtyosis would look at it and comment on it. The only person I know with it is me(vulgaris) so I don't know if it would be helpful to others too and would love some feedback on it. The link is:
Living with Ichthyosis Thanks so much! smile
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#28069 - 11/16/11 06:03 AM Re: Are my tips right? [Re: Phobia]
mickle Offline
Member

Registered: 11/16/11
Posts: 8
Good work from you side....
I think you on right way...so keep it up.
Best of luck...

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#28070 - 11/16/11 08:28 AM Re: Are my tips right? [Re: Phobia]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
It looks good from this end. It isn't detailed enough for some of the really severe types (rubbing someone with blistering EHK would be baaaaad, and acid creams would burn the daylights out of someone with Netherton's), but is very good advice for people dealing with IV, which would be the great majority.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#28085 - 11/19/11 08:03 AM Re: Are my tips right? [Re: mickle]
mickle Offline
Member

Registered: 11/16/11
Posts: 8
spam


Edited by Hearsay (11/20/11 10:59 AM)

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#28135 - 12/20/11 12:05 AM Re: Are my tips right? [Re: Phobia]
faverric Offline
New member

Registered: 12/20/11
Posts: 2
i am spam ?

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#28136 - 12/20/11 09:07 AM Re: Are my tips right? [Re: Phobia]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Spam is anyone adding links to buy viagra, health insurance and whatever other crap I am seeing on a daily basis. If you're selling something, you're not welcome here. It's in the terms of service when you signed up.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#28140 - 12/23/11 06:39 AM Re: Are my tips right? [Re: faverric]
faverric Offline
New member

Registered: 12/20/11
Posts: 2
Originally Posted By: faverric
i am spam ?


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