Hi Sophiesmum and Aussiemum and Courney and Brandynsmum(?)
I have two girls with nbCIE anf wouldalso love them to get to know other kids with similar skin conditions in Aus. WWe are in melb. I have noticed an increase in Aus members on this forum over the last few months and that is fantastic. We do not know any others here in Melbourne at the moment and my older daughter is 2 1/2 so I know that the day will be coming, that she will ask why she is different. So if there are any of you out there who are keen to get in touch, feel free to message me on thsi forum and we can go from there.
I have two daughters, both with nbCIE.