Actually, we're trying again here in Richmond on March 14th. Not worth a really long drive, but I'll have at least 2 families in the same room together then if you want to join us.
If you email me with your regular address I'll add you to my contacts.
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.
email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"