Derma Smoothe is a topical oil that was recommended to me for his scalp. It is prescription, so my derm. had to call it in. A lot of people love it, so it may work for you. I like it ok, but I don't get nearly the results everyone else has gotten who has used it. My son may just be too young, because I was told to cover his head with plastic wrap and a cap, which I do, but inevitably he pulls it off! And you are supposed to do it overnight but I get nervous about him sleeping with plastic. So, that may be why it doesn't work as well.
What I have found that helps his skin, is putting pure dead sea salt in his bath water. He soaks in that for 20-30 min. It doesn't get all of the dead skin off but it does really help.
My name is Candace. My son, kenny was born May 19, 2009 diagnosed with Lamellar Ichthyosis. My daughter Chloe was born June 4, 2011 unaffected.