Derma Smoothe is a topical oil that was recommended to me for his scalp. It is prescription, so my derm. had to call it in. A lot of people love it, so it may work for you. I like it ok, but I don't get nearly the results everyone else has gotten who has used it. My son may just be too young, because I was told to cover his head with plastic wrap and a cap, which I do, but inevitably he pulls it off! And you are supposed to do it overnight but I get nervous about him sleeping with plastic. So, that may be why it doesn't work as well.
What I have found that helps his skin, is putting pure dead sea salt in his bath water. He soaks in that for 20-30 min. It doesn't get all of the dead skin off but it does really help.
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My name is Candace. My son, kenny was born May 19, 2009 diagnosed with Lamellar Ichthyosis. My daughter Chloe was born June 4, 2011 unaffected.