My husband and I have been discusing haveing another baby. Our 1 year old daughter has lamellar ichthyosis. I have heard that there are genetic test that they can do while you are pregnant to determine if the baby will have ichthyosis. Has anyone had this done? What kind of test is it? When we had Kilah we had no idea that she had this. We were not prepared. The hospital I had her at had never had a baby born there with ich, nor had they ever heard of it. I would like to be prepared and at a hospital that knows something about it and how to handle it.
Jalena, Mom to Kilah born 11/29/08 as collodion baby, she has been diagnosed with Lamellar Ichthyosis.
Also mom to Hailey 4 years old-unaffected