Thank you for your replies, sometimes is just good to vent!
Kati- The pity bothers me too and perhaps that is why I keep thinking this will be such an issue for Brandyn. People are always upset to hear that this is a lifelong condition.
Like Kim, they tell me he'll grow out of it and when I say he won't, it's always "oh dear, poor thing"
Wow Emma on finding someone who has heard of ichthyosis!! That's precisely why there needs to be more awareness. If people had heard of the condition it would make our long explanations easier and less frequent
Ember- Im glad to know your little boy isn't bothered by the comments and I think it's wonderful that he can explain the condition in his own way. It gives me hope and I know what you mean about not knowing how our kids will handle it. It's fearing the unknown.
All in all I know I have a strong beautiful little boy and nothing can change that. I guess my biggest fear is that the day MAY come that one of these comments breaks his incredible spirit..