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#25412 - 11/11/09 02:19 PM Swine flu vaccine?
scotsmum Offline
Member

Registered: 08/25/07
Posts: 88
Loc: scotland, uk
Hi, just wondered if many peoples kids had got the vaccine yet and/or are aware of needing it? we were called by our gp practice to get it for our son (CIE) and I was surprised cos had not thought about it, GP said that he is classed as immuno-suppressed due to his ich, so was priority in same way anyone with health problem such as asthma or diabetes. Wanted to bring up as had not seen it mentioned at all.

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#25414 - 11/11/09 05:41 PM Re: Swine flu vaccine? [Re: scotsmum]
jrmiss86 Offline
Member

Registered: 06/07/05
Posts: 378
Loc: Marlton, NJ, USA
we looked into it, but since it is hard to get we decided not to get it. I just plan on being on top of hand washing etc.. but then again, my kids don't have some of the same problems others with ich. have when they get sick.
_________________________
Heather
Mom to:
Alex (xli and Kallmans - 2/3/05)
Liz (3/16/07)

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#25416 - 11/11/09 06:41 PM Re: Swine flu vaccine? [Re: jrmiss86]
KimNL Offline
Member

Registered: 07/31/08
Posts: 146
Loc: Holyrood, NL, Canada
My husband and I are done - as well as our three children!
We both work in a hospital setting (I'm a nurse - he's an electrician).
Casey (LI/CIE) was done about 10 days ago, as well as Sara, our 3 year old.
Kaitlyn is 6 and was done in school last week.

I was not aware Casey was considered immuno-suppressed due to ich. Why is that?
I just has them done because small kids are at risk generally.

No side effects!
_________________________
Kim
Mom to Casey born Feb 17/08(?LI/CIE), Sara born Feb 18/06, and Kaitlyn born July 2/03
Casey has been tested positive for a genetic mutation in the ICHTHYIN gene (which is indicative of either LI or CIE)


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#25417 - 11/11/09 07:51 PM Re: Swine flu vaccine? [Re: KimNL]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
My kids finally got it last week. There was supposed to be a clinic at the school that got canceled due to lack of supply. My pediatrician called last Monday and said my kids qualify as a high risk group. I have a preemie under age 2 with a history of respiratory problems, which was the reasoning, not so much the ichthyosis. Although, the high fever common with flu puts them at risk of heat exhaustion.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#25425 - 11/12/09 01:04 AM Re: Swine flu vaccine? [Re: Hearsay]
Keith Offline
Member

Registered: 07/29/09
Posts: 48
Loc: Southern California
We covered the flu shot topic over a month ago in here. I wouldn't think the swine flu shot would have different results since it is still just a flu shot. I copy and pasted my response/info from the last discussion below. It should all still be relevant.


I can understand wanting to get the flu shot especially if you or your child has a weak or compromised immune system. The question is, does it work? Flu shots are prepared nearly a year before the flu season starts and are at best a guess of what strain of flu will hit us, not to mention they may contain mercury as part of the preservative thimerosol, a known neurotoxin. The CDC will tell you it has a high percentage of effectiveness, independent research will tell you a much different story. The three flu strains that go into the vaccine are chosen nearly a year before flu season hits. Because the viruses mutate rapidly, the strains in the vaccines often donít match the actual viruses that come to your town each season. Here are some websites that explain how the flu shot is made, how effective/accurate past flu shots have been and how the "CDC crystal ball" is used to make the flu shots.

http://vran.org/about-vaccines/specific-vaccines/influenza-vaccine-flu-shot/flu-shots-%E2%80%93-do-they-really-work/

http://www.totalhealthbreakthroughs.com/2008/11/do-flu-shots-really-work/

http://living.health.com/2008/02/25/read-this-before-you-get-a-flu-shot/


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#25428 - 11/12/09 03:51 AM Re: Swine flu vaccine? [Re: Keith]
Sideshow_bob Offline


Member

Registered: 02/11/09
Posts: 61
Loc: US, Midwest
And now, for the rest of the story...

http://www.npr.org/templates/story/story.php?storyId=114299697

The H1N1 vaccine works very, very well. Thimerosol has *not* been shown, in study after study, to have negative effects on children. The levels in the flu vaccine are way below the level that could cause any harm. Yes, some people suffer very rare side effects from the vaccine, and that is tragic. More people die from the flu, though, and that is enough impetus for me to get myself *and* my children vaccinated.

Kim, to answer your question about the "immune compromised" question, I think some doctors classify chronic conditions as I.C. for purposes of the flu shot. It's just a designation that moves your kid to the front of the line, since illness with high fever can be so hard on our kids' bodies.



Edited by Sideshow_bob (11/12/09 03:54 AM)
Edit Reason: ** edited to correct the link
_________________________
6 year old daughter with CIE (non-bullous)and a non-affected infant daughter.

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#25438 - 11/13/09 10:02 PM Re: Swine flu vaccine? [Re: Sideshow_bob]
Laurensmom Offline
Member

Registered: 12/29/04
Posts: 212
Loc: north billerica, massachusetts...
Hi all,

We got ours. The pediatrician called us and informed us that Lauren was on the short list for the same reason "immuno compromised" I was nothing but grateful for their call and concern. Let us not forget that most of our kids are of the age, where a booster will be necessary to keep them protected through the flu season (6 months to 9 years) It can not be given until a month after the first and many offices will want to vaccinate all kids with at least one dose before giving boosters. Our doc told us to call again at the end of this month for maybe December.

Stay Healthy,
Shannon

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#25454 - 11/15/09 03:34 AM Re: Swine flu vaccine? [Re: Laurensmom]
CShell Offline
Member

Registered: 11/10/05
Posts: 1193
Loc: Fort Meade, MD
No, we will not be getting this shot. We don't normally get the flu shot either for our daughter (Netherton's). This particular shot was way too rushed, and contains way too many adjuvants than I'm comfortable with. The last time the swine flu scare hit the US in the 1970's it did not have great results. I had a flu, that was most likely swine flu considering the incidence of H1N1 in my area, a month or so ago, and it was really no big deal. It was actually more pleasant than a normal flu, the effects weren't as pronounced while sick and it lasted for less time. For our daughter's health status, I don't think she's in any particular risk category, so for our family it make sense to skip the shot. No one has actually talked to us about it, to be honest. I wouldn't advocate this across the board for all ichthyosis sufferers, but this is the decision that I feel comfortable with for my family.
_________________________
Courtney
Mom to Julia

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#25459 - 11/16/09 12:26 AM Re: Swine flu vaccine? [Re: CShell]
Keith Offline
Member

Registered: 07/29/09
Posts: 48
Loc: Southern California
Sideshow,
Can you please post these studies that claim thimerosol has no side effects and who sponsored them.

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#25478 - 11/17/09 04:26 PM Re: Swine flu vaccine? [Re: Keith]
TiffanyJ Offline
Member

Registered: 11/06/07
Posts: 43
Loc: Jackson, MS
I have to agree with Courtney. My self, my husband, our 2 year old with LI and our 11 year old with out all had H1N1 in late August. We took the meds and were better in 2 days. It was no where as bad as the regular flu. Our 5 year old with LI, who never gets sick, didn't have so much as a sniffle.
_________________________
Tiffany & Edwin White
Taylor 12/10/97
Treasure 6/23/04 lamellar and collodian
Jackson 5/3/07 Lamellar and collodian

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#25479 - 11/17/09 04:38 PM Re: Swine flu vaccine? [Re: TiffanyJ]
jrmiss86 Offline
Member

Registered: 06/07/05
Posts: 378
Loc: Marlton, NJ, USA
Our ped. and my mom, who has a dr. in nursing, both have said that in something like 99% of the population the swine flu is just a bad cold and very mild. The only reason we are hearing so much about it is because of the media hyping up the problem cases. I don't remember the exact numbers but my ped. told us that it was something like 10 times more people died of the regular flu last year than the swine flu.

I know some of the people on here react to being sick differently then the general population and everyone has to decide what is right for their own family, but my general opinion is that it is a big bunch of hype that has been ramped up by the media because they got tired of talking about Obama and the government.
_________________________
Heather
Mom to:
Alex (xli and Kallmans - 2/3/05)
Liz (3/16/07)

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#25480 - 11/17/09 05:13 PM Re: Swine flu vaccine? [Re: jrmiss86]
Keith Offline
Member

Registered: 07/29/09
Posts: 48
Loc: Southern California
Heather,
I couldn't agree more. In fact research not controlled by the CDC or the government shows exactly that. The swine flu shot hadn't even been created when it hit the southern hemisphere and they survived it without it being the huge pandemic they hyped it up to be. I'm not saying no one should get a flu shot, if it makes you feel protected have at it. Whether you have gotten, are planning to get or won't receive the swine flu or any other flu shot, please read what they have to say at the link I am posting.
http://articles.mercola.com/sites/articl...anda-Blitz.aspx

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#25481 - 11/17/09 07:08 PM Re: Swine flu vaccine? [Re: Keith]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
It's really not this particular bug that's the problem. It's very mild for most people, although many people end up with a week or two of full blown flu misery, and the people that are dying are typically young and healthy - ages 2-50 with no complicating health problems.

Seasonal flu normally kills many more people because the people that it kills are already old and sick or young and not partially immune from exposure to similar flu viruses. It kills 40,000 per year or so, but the great majority are those with CHF, advanced diabetes, emphysema, pneumonia, are bedridden or have other problems, or babies under 6 months.

The real story with H1N1 flu isn't this specific virus, but it's ability to jump across species, mix with other flu viruses and potentially become lethal because nobody is immune.

Remember bird flu? It's still out there, killing chickens. It so far only occasionally gets into a human, and typically it is killing the chicken handler and his family in China or Indonesia or wherever. Bird Flu has spread a few times from person to person...and it kills 80% of those that get it.

So what happens on the day that stupid little cold-like swine flu that barely hurts anybody runs into someone fighting a raging bird flu infection? There's a VERY good chance that the bird flu virus can acquire the virulent (spreads easily to everybody) nature of swine flu, while retaining the kills 80% factor of bird flu.

We don't know when that's going to happen. Every few years, it may seem like a big scare - OMG!!! SARS is going to kill us all!!!. The media doesn't help by crying wolf every time a new one pops up, but the epidemiologists that study this stuff have every real reason to fear the next big one. It's coming. We just don't know when or where or how bad it will be, and because flu vaccine takes so long to create, it will likely be everywhere by the time the vaccine is available, just like swine flu this year.

It's very hard to balance the real threat versus the perceived threat without having the general populace tune it out or panic.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#25482 - 11/17/09 07:21 PM Re: Swine flu vaccine? [Re: Hearsay]
Sideshow_bob Offline


Member

Registered: 02/11/09
Posts: 61
Loc: US, Midwest
_________________________
6 year old daughter with CIE (non-bullous)and a non-affected infant daughter.

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#25484 - 11/17/09 09:48 PM Re: Swine flu vaccine? [Re: Sideshow_bob]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
<applause for Sideshow_Bob>
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#25487 - 11/18/09 01:06 AM Re: Swine flu vaccine? [Re: Hearsay]
jrmiss86 Offline
Member

Registered: 06/07/05
Posts: 378
Loc: Marlton, NJ, USA
Jennifer,

That is pretty much what I was trying to say. Sure is this virus a problem for a lot of people, yes no denying that. I just think the media works very hard to make people panic. The government, at least here in wonderful Jersey isn't helping matters by going on and on about how you need to run out right now and get the shot, but forgetting to add that you can't find the shot anywhere. Like I said, I only have experience here in Jersey. It may very well be different in other states.

And for the record if I could find it, I would be getting Alex the shot since he runs such high fevers for even a simple cold. I just get so frustrated with the media hyping things up just to scare people.
_________________________
Heather
Mom to:
Alex (xli and Kallmans - 2/3/05)
Liz (3/16/07)

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#25519 - 11/21/09 06:29 AM Re: Swine flu vaccine? [Re: TiffanyJ]
Keith Offline
Member

Registered: 07/29/09
Posts: 48
Loc: Southern California
As I stated in my posts my main opposition to flu shots of any kind is the fact that even if they have the formula correct to begin with the virus mutates, like all viruses do, leaving you with a flu shot that has no effect on the strain you may get. It will be interesting to see how many people get the swine flu(laboratory confirmed) who actually had the swine flu shot. Chances are that info will never be released to the public.
As far as the discussion of thimerosal being harmless at the levels in the vaccine and those who suffer dangerous side effects a tragedy. Well, yes, it is. It's a tragedy because thimerosal does not have to be used in any vaccines. It is a preservative which is 49% mercury by weight, used by money hungry pharm companies so that instead of packaging individual doses which would not require thimerosal, they can package a larger vial of it enabling them to extract multiple vaccinations from the same vial. The thimerosal kills any bacteria and fungi that may enter the vial every time they insert a needle into it. The Department of Defense classifies mercury as a hazardous material that could cause death if swallowed, inhaled or absorbed through the skin. Studies indicate that mercury tends to accumulate in the brains of primates and other animals after they are injected with vaccines. Mercury poisoning has been linked to cardiovascular disease, autism, seizures, mental retardation, hyperactivity, dyslexia and many other nervous system conditions. That's why the FDA rigorously limits exposure to mercury in foods and drugs. The toxicity of mercury has never been in question. The real question is precisely how much mercury-laced thimerosal is toxic, and what are the possible consequences for our children at low doses? THIMEROSAL HAS BEEN BANNED AROUND THE WORLD BUT NOT IN THE USA.
That might explain why thimerosal was eliminated in many countries 20 years ago. In 1977, a Russian study found that adults exposed to ethylmercury, the form of mercury in thimerosal, suffered brain damage years later. Studies on thimerosal poisoning also describe tubular necrosis and nervous system injury, including obtundation, coma and death. As a result of these findings, Russia banned thimerosal from children's vaccines in 1980. Denmark, Austria, Japan, Great Britain and all the Scandinavian countries have also banned the preservative. Do I need to go any further?

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#25520 - 11/21/09 06:30 AM swine flu [Re: TiffanyJ]
Keith Offline
Member

Registered: 07/29/09
Posts: 48
Loc: Southern California


Edited by Keith (11/22/09 12:33 AM)
Edit Reason: duplicate post

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#25521 - 11/21/09 01:21 PM Re: Swine flu vaccine? [Re: Keith]
KimNL Offline
Member

Registered: 07/31/08
Posts: 146
Loc: Holyrood, NL, Canada
You know, Keith, you are entitled to your opinion. But this is an individual decision by individuals and parents for their kids. Many websites are less than reputable. Research can be interpreted in may ways and skewed to get the most favourable response (depending on your position).
I have gotten the vaccine for my kids, my husband and me - I am a nurse - and I don't believe it's harmful - but rather, beneficial.
Good luck, everyone, in your deliberations about this.
_________________________
Kim
Mom to Casey born Feb 17/08(?LI/CIE), Sara born Feb 18/06, and Kaitlyn born July 2/03
Casey has been tested positive for a genetic mutation in the ICHTHYIN gene (which is indicative of either LI or CIE)


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