I applied for SSI/SSD benefits for Evan last year but was quickly turned down because we didn't meet the income guidelines ~ I didn't even make it past the kind receptionist at the SSI/SSD counter. I found the whole experience very frustrating, so we just decided not to pursue it. Kati, please let us know what you find out through the attorney, I was curious if hiring one would change the decision. FYI - I was told that although Evan didn't qualify for SSI/SSD that we could receive a medical card for him that would cover any medical costs our insurance doesn't, to this point we have not applied.
Mommy of Evan, born 12/26/2008 with Collodian, diagnosed with Lamellar Ichthyosis.
Evan has three brothers, Nathan (16 yrs.), Austin (13 yrs.) and Ryan (4 yrs.) all unaffected.