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#24505 - 06/01/09 04:27 PM Anyone Else Worried About Overheating At Disney?
Sideshow_bob Offline


Member

Registered: 02/11/09
Posts: 61
Loc: US, Midwest
Our 4 year old had a great time at the conference last year, and is really excited about Disney next year. I, however, am less than thrilled that FIRST chose the middle of summer in Florida for the conference. How are we supposed to deal with little kids overheating? I know we can go to the front of the lines, but Disney is still a LOT of walking. And the cooling vests really only work for an hour -- even if I make her ride in a stroller, that's still lugging the cooling vest inserts and a cooler around, and having to figure out how to recool the inserts after they've been used.

Part of me just wants to take her to Disney in February when it makes more sense, and skip the conference, but I know she'll be heartbroken to miss seeing her friends. Anyone else as torn as I am?
_________________________
6 year old daughter with CIE (non-bullous)and a non-affected infant daughter.

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#24507 - 06/01/09 04:44 PM Re: Anyone Else Worried About Overheating At Disney? [Re: Sideshow_bob]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
I went in June with my affected 2.5yo and unaffected 18mo while pregnant. It was very hot, yes. We got the special pass and used it to skip ahead to wherever the covered part of the line was. All of the shops are air conditioned, plus rides like 'it's a small world"

We went early in the morning, then left for the heat of the day. If my children had been older, we would have gone back in the late afternoon and done more then.

Also, Florida heat goes up and down like a yoyo. The day before we went, it was in the 70's all day and gorgeous. The day of, it was upper 80's and too hot to be out very long. You just never know.

At any rate, the conference will be indoors, as always.

The date of the conference is fixed because many schools are in session until mid-June and they are trying to make it possible for a maximum number of families to attend.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#24508 - 06/01/09 07:48 PM Re: Anyone Else Worried About Overheating At Disney? [Re: Sideshow_bob]
aylasmom Offline
Member

Registered: 05/29/06
Posts: 215
Loc: Waterford ,MI
I am with you...Ayla, Derek and I will meet you at Disney in February...

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#24511 - 06/03/09 03:01 AM Re: Anyone Else Worried About Overheating At Disney? [Re: aylasmom]
brandynsmum Offline
Member

Registered: 08/25/08
Posts: 269
Loc: Connecticut
I am definitely nervous. Brandyn overheats in about 5 min. when the weather is hot and it takes a lot of work to get him cooled down again. I'm thinking of getting him a cooling vest and testing it out first.
_________________________
My name is Morgan. My son Brandyn was born on 26th June, 2008 in Sydney, Australia as a collodion baby and has been diagnosed with lamellar ichthyosis.

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#24512 - 06/03/09 04:36 PM Re: Anyone Else Worried About Overheating At Disney? [Re: brandynsmum]
Laurensmom Offline
Member

Registered: 12/29/04
Posts: 212
Loc: north billerica, massachusetts...
Hi Jen (et al.),

How are the girls? I cant believe how quickly the time has gone and would love an update.

I thought about the heat in Florida too, but our exicitement of the trip timed with the conference took over. Our plan is not to tell Lauren too far in advance. She's never been before and her expectations might be pretty low as far as park hours ect.... My plan is to have her in the conference child care (camp) during the day and take advantage of what might be cooler evenings for the parks. We will probably stretch the trip out by a couple days on either end just to make sure we miss nothing (conference events or disney). Have you checked out the pool area at the hotel. Its more like a water park and certainly a better place to spend the hotter time of the day. You just have to go. What would the conference be without our two girls together...Lauren would be bummed (that was my attempt at guilt).

Take care and email me. Id love to hear from you.

Shannon

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#24514 - 06/04/09 12:41 AM Re: Anyone Else Worried About Overheating At Disney? [Re: Laurensmom]
anaronni215 Offline
Member

Registered: 10/13/08
Posts: 37
Loc: Rhode Island, USA
Hi everyone. I just want you all to know that there is no need to worry about the heat in disney. When you get there go directly to guest relations and explain to them that your child/children canoot deal with the heat. We have a handicapped plate so we showed them it and they gave us a pass for the whole day. We used our stroller as a wheelchair and didn't have to wait in any lines. When we wanted to see a charecter a disney cast member would escort us to the front of the line. They actually date the pass so it will be good for entire visit.
_________________________
My name is Julie and I am the proud mom of 2 CIE children born with a collodion membrane. My Ana is 13 , GIovanni is 6 and I have a uneffected daughter Francesca who is 18 months old

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#24518 - 06/04/09 12:20 PM Re: Anyone Else Worried About Overheating At Disney? [Re: anaronni215]
Sideshow_bob Offline


Member

Registered: 02/11/09
Posts: 61
Loc: US, Midwest
What time of year did you go?
_________________________
6 year old daughter with CIE (non-bullous)and a non-affected infant daughter.

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#24520 - 06/04/09 02:24 PM Re: Anyone Else Worried About Overheating At Disney? [Re: Sideshow_bob]
anaronni215 Offline
Member

Registered: 10/13/08
Posts: 37
Loc: Rhode Island, USA
We have been to Florida in feb, march, april, July and Oct. July was very hot. I would say to try to stay away from FL in June , July and Aug but I know thats when alot of people get to go. Most of my family live down there and say the summers are brutal. I know disney is alot of walking and that was our main concern. We mapped it out where we would stop in little shops and cool off while walking one area to the next. They do have areas also that water mists out. We took full advantage of those areas. The heat is high so you can even pour water on the children. We always let Ana wear a bathing suit as a top. When we left the parks dad would go to car first and start the air conditioning. Each park has alot of shows so figure out a plan where you can do a couple rides then shoot over to a nice air conditioned room.


Edited by anaronni215 (06/04/09 02:29 PM)
_________________________
My name is Julie and I am the proud mom of 2 CIE children born with a collodion membrane. My Ana is 13 , GIovanni is 6 and I have a uneffected daughter Francesca who is 18 months old

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#24540 - 06/07/09 07:31 PM Re: Anyone Else Worried About Overheating At Disney? [Re: anaronni215]
BritMum Offline
Member

Registered: 07/25/08
Posts: 226
Loc: UK
It's not only heat issues that concern me in such weather, it's the catching the sun apsect!! How do you experienced parents of childen with Ich deal with the sun? Do you simply lather the kids in sunscreen and let them get on with it? We've noticed that even on overcast days that our daughter has the ability to catch the sun!! And yes, that's even in the UK lol!! I like to be over cautious and have her have some sunscreen on her exposed areas (face, hands, neck etc) but this does dry her out more than she would otherwise be!


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#24541 - 06/07/09 08:17 PM Re: Anyone Else Worried About Overheating At Disney? [Re: BritMum]
Sideshow_bob Offline


Member

Registered: 02/11/09
Posts: 61
Loc: US, Midwest
Britmum, that is a huge concern for us, as well. We've switched to sunscreen clothing (rashguards or clothes with a chemical sun guard added) when we know we'll be out in the sun a while. I've found that spray sunscreens work and don't dry our daughter out, but she hates it on her face. For her face and neck we use a stick sunscreen from Coppertone made for babies; I'm sure there is a counterpart in the UK.

Still haven't made up my mind about Disney yet... I have a friend who was a character actor at Disney (she was actually Mickey Mouse!) and she recommends we go in January/February for the least hot weather.
_________________________
6 year old daughter with CIE (non-bullous)and a non-affected infant daughter.

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