Izzy~ I replied to your post on the EHK board I think. I have EHK or BCIE (like CIE but it blisters)... my son TJ was born with it and is 9 months old.
I'm currently almost 2 months pregnant with #2. We are very happy about it... What creams and gells do you use on him??? Try Vaseline after a bath OR even to make it easier. Get baby oil jel from walmart (generic is cheap) and generic Petroleum Jelly use a little of the jel first and then rub in the vaseline well... That's what works for me! I only have to do it 1x MAYBE 2x a day. If generic makes him break out at all (you'll know if he gets a red blistery rash) then switch to name brand.
Get some Cortisone ointment for the itching of the excema if you haven't already. Just ask his Dermatologist. If you have any questions and live in the U/S where you can call me out here in Socal. Private message me and I'll send you my phone number. We have 4 generations in our family with BCIE or EHK. We have found some pretty good ways to keep our skin looking very clear. most ppl think I have a sunburn, and sometimes they can't tell at all until they look close. (If I'm nice and greased up.) lol,
Wife to Carlos and Mommie to TJ, preemie born 1 mo early 8/14/08 with EHK, Down Syndrome, and a BEAUTIFUL personality!