I have EHK and am 6 months pregnant with my first baby, and yesterday morning I got up and my face was stinging and feeling itchy on my left hand side. I looked in the mirror and I have developed blisters on my face. The only time I ever recall having blisters on my face was several years ago and I was in a bad way with it, couldn't even eat it was so sore. It made me feel very sick and since then I've always had a bit of a phobia of getting them again. (I had antibiotics for it then at the time by the way).
Today they don't seem as bad, a little red but don't seem to have got any bigger which was my biggest worry. I am currently applying Brulidine cream, as sparingly as possible I might add as I'm VERY careful what I use at the best of times, even more so now I am pregnant. I've used Brulidine cream since I was a toddler and it's always worked wonders for me personally, that's why I've always stuck to it for when my skin breaks or if I see signs of blisters starting. It helps keep them at bay, it works great on spots too.
When I first found out I was pregnant one of the very first things I asked my doctor was what I could and couldn't use for my EHK while pregnant and he told me I'd be fine using the Brulidine as I've always done, as long as I don't use too much. It's a bank holiday here this weekend though and I can't get an appopintment with my doctor - I've tried. I'll keep a close eye on the blisters though, and if I do have any concerns I'll get it checked out.
I was a bit worried yesterday in all honesty as I know I will be VERY limited to what I can use for the blisters. I very much doubt I'll be able to have any prescribed antibiotics.
Sorry for the long post, but I just needed to get this off my chest I hope you don't mind.
My name is Melanie, I'm 32 years old and am from the UK. I have Bullous Ichthyosis (EHK)and have a baby daughter with Bullous/EHK also. I run the website below;www.friends-of-ichthyosis.webs.com