Hi Cindie, Thanks for the suggestion. However, we finally got an appointment with Childrens Hospital here in LA, so we'll see how that goes. He's currently being seen at UCLA but like I've been telling to anyone who would listen, we are getting frustrated by their lack of genuine care for my Nate. They are very difficult to reach on the phone, rarely returns my calls. We continue to go there because his other doctors are there too (Immunologists, GI doctor, Eye doctor, Nutritionist, Urologist) and we wanted to have a centralized health records.
What finally did it for me though was last week when we were at UCLA to see his Immunologist and my Natey's head/scalp was weeping with sticky, icky liquid and although we've seen that happen before, wasn't as bad as that day. The Immunologist suggested we go 'Upstairs" to show the Dermatologists but they refused to see us because we didn't have an appointment. We went out to the cafeteria to wait for our next appointment and we saw his main Dermatologist (the clinical director of dermatology) walking back to the hospital. we walked with him and asked if he had a second to look at Nate's head.
The good doctor never stopped walking, never slowed down and just told us to wash his head with water/bleach solution. He didn't even know what it was because he didn't take a moment to look!! And to think that they "used" my baby a couple of times as clinical subject at a couple of grand rounds!
I told my husband, that's it for me. I want somebody who has genuine concern for Nate and not somebody who just treats him a as some sick patient.
Thank you for letting me gripe here. And thank you for the referrals.