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#23679 - 01/14/09 08:32 PM Refer NY Ped Dermatologist with Ich experience
KyliesMommmy Offline
Member

Registered: 01/12/09
Posts: 29
Loc: NY
I am looking for someone who can refer me to a pediatric dermatologist for my 5 month old daughter. We are located in NY about 1 hour north of NYC. I am willing to travel. I have not been very happy with the doctors we have seen so far and I wanted to explore my options. So far we have been told they believe her to have a mild form of lamellar. We are patiently awaiting genetics testing results.

Thanks so much!

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#23705 - 01/17/09 01:16 AM Re: Refer NY Ped Dermatologist with Ich experience [Re: KyliesMommmy]
libby Offline
Member

Registered: 02/25/05
Posts: 356
Loc: USA
I don't know how far you are from New Haven, CT, but we took our daughter to Yale Dermatology. Dr. Antaya (sp?) was who we saw. After 5 yrs of wondering what our daughter had, he took one look at her and said she had ichthyosis. We had never heard the term before. She did have a biopsy and was diagnosed with nb-CIE.

Good luck!

Olivia

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#24071 - 03/27/09 02:47 PM Re: Refer NY Ped Dermatologist with Ich experience [Re: libby]
nosh Offline
New member

Registered: 06/15/03
Posts: 4
Dr Seth Orlow at NYU Has experience with ichthyosis and is top notch.

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#24075 - 03/30/09 02:03 AM Re: Refer NY Ped Dermatologist with Ich experience [Re: nosh]
didi4nyc Offline
Member

Registered: 03/21/06
Posts: 168
Loc: ny
Columbia Presbyterian in NYC, upper manhattan is where I have gone all my life, I recommend them 100%.

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#24751 - 07/10/09 03:35 AM Re: Refer NY Ped Dermatologist with Ich experience [Re: didi4nyc]
KyliesMommmy Offline
Member

Registered: 01/12/09
Posts: 29
Loc: NY
A quick update we have been to see Dr. Milstone in New Haven twice and have been very happy. Also we got the genetics tests results back from Columbia Presbyterian. Kylie has an Ichthyin Mutation. We have been using Glycerin which you dilute with water and its amazing! Truly the best so far!

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