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#22888 - 10/17/08 03:59 AM Pictures
brandynsmum Offline
Member

Registered: 08/25/08
Posts: 269
Loc: Connecticut
_________________________
My name is Morgan. My son Brandyn was born on 26th June, 2008 in Sydney, Australia as a collodion baby and has been diagnosed with lamellar ichthyosis.

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#22889 - 10/17/08 09:20 AM Re: Pictures [Re: brandynsmum]
BRIANNA_TROXELL Offline
Member

Registered: 08/08/08
Posts: 48
Loc: WHITEHALL,PA
Your little boy is beautiful! (I hope thats ok to say being a male and all, but he is!) His skin looks great. My little man,Michael, is about the same age he just turned 4 months two days ago. I can't believe it how fast it goes either. I love little ones so much. Its hard not tooo :-) Have a great day
Brianna
_________________________
BRIANNA TROXELL

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#22896 - 10/17/08 03:15 PM Re: Pictures [Re: BRIANNA_TROXELL]
libby Offline
Member

Registered: 02/25/05
Posts: 356
Loc: USA
OMG, what a cutie. He seems like such a happy little guy! Thank you so much for sharing. It is so nice to have pictures on this bb once again!

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#22902 - 10/18/08 02:33 AM Re: Pictures [Re: libby]
Cindylou183 Offline
Member

Registered: 05/25/07
Posts: 160
Loc: Lufkin, Tx.
You have a darling little boy, he looks very happy. Thanks for sharing I love see everyones pics.
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Cynthia
Lufkin, Texas

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#22916 - 10/19/08 03:41 AM Re: Pictures [Re: Cindylou183]
brandynsmum Offline
Member

Registered: 08/25/08
Posts: 269
Loc: Connecticut
Thank you everyone!

Brianna- Isn't 4 months such a cute age. Brandyn's personality is really coming out now smile Having said that, I hope you're getting more sleep than we are!
If you don't mind me asking, what type of ichthyosis does Michael have? I'm just wondering because our dermatologist just wants us to continue using Eurcerin for now and I'm just wondering if you have any tips. Brandyn's skin is looking pretty good right now because he's just gone through what seems like a complete "shed" for lack of a better word! The scales on his scalp are the most noticeable I think. It's hard when they're this little I guess, because there isn't much you can put on their skin..
_________________________
My name is Morgan. My son Brandyn was born on 26th June, 2008 in Sydney, Australia as a collodion baby and has been diagnosed with lamellar ichthyosis.

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#22920 - 10/19/08 10:28 PM Re: Pictures [Re: brandynsmum]
BRIANNA_TROXELL Offline
Member

Registered: 08/08/08
Posts: 48
Loc: WHITEHALL,PA
Morgan,
Yes, Michael is the same. Starting to move around and "talk" more. He is def. going to be my little attention getter. Michael has X-linked. He looks very good so far. Just really dry on his legs. We were told to use Cetaphil. I give him a sponge bath when he wakes up in the morning with cetaphil lotion, then cetaphil cream on top. If he is getting dry in the after noon I do another speonge bath or lotion then cream on top, then a bath every night (no skipping) with lotion then the cream and I do use olive oil on his head, but only when he has scalp scales, but he hasnt had any since about 5 weeks. Yes, thats what my derm said as well that you want to use milder lotions because they are so little.
hope it helps
Brianna
_________________________
BRIANNA TROXELL

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#22932 - 10/20/08 02:44 AM Re: Pictures [Re: BRIANNA_TROXELL]
brandynsmum Offline
Member

Registered: 08/25/08
Posts: 269
Loc: Connecticut
Brianna, That's great! Michael's skin sounds like it's doing very well. I'm definitely going to try the olive oil on Brandyn's scalp tonight. We also bathe him twice a day which works SO well. The dermatologist kept telling us that it wouldn't help but my god it does!!
_________________________
My name is Morgan. My son Brandyn was born on 26th June, 2008 in Sydney, Australia as a collodion baby and has been diagnosed with lamellar ichthyosis.

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#22935 - 10/20/08 12:47 PM Re: Pictures [Re: brandynsmum]
KimNL Offline
Member

Registered: 07/31/08
Posts: 146
Loc: Holyrood, NL, Canada
He is a gorgeous boy!
_________________________
Kim
Mom to Casey born Feb 17/08(?LI/CIE), Sara born Feb 18/06, and Kaitlyn born July 2/03
Casey has been tested positive for a genetic mutation in the ICHTHYIN gene (which is indicative of either LI or CIE)


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#22940 - 10/20/08 10:56 PM Re: Pictures [Re: KimNL]
aylasmom Offline
Member

Registered: 05/29/06
Posts: 215
Loc: Waterford ,MI
So cute! I miss having a really little one around... We love olive oil for removing scalp build up-

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