Like Pauline I felt bad that you haven't had any responses. I certainly understand the need to be near someone with a similar condition but I have never met another...yet.
Welcome to our fun and info-filled board. We are looking forward to hearing more from you and sharing our own stories.
35 with EHK
Sarah & Son
EHK & ARCI
"Today is the Tomorrow that you worried about Yesterday, and all is well"