Hello to you all! My name is Rich, but I often use the screen name of MISFIT. I'm 27 years old and have lamellar ichthyosis. This looks like a great forum, I've never met anyone else with my condition so this ought to be fun! I look forward to talking to any one else with lamellar, and I would love to be able to offer advice to any parents of a child with it after 27 years I like to think I know a thing or two. lol.
P.S. anyone else think it's annoying that spell check does not recognise the words lamellar or ichthyosis?
It's good to be alive