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#22229 - 10/27/06 04:22 PM rare condition/rarer coincidence
grammy Offline
Member

Registered: 08/01/06
Posts: 39
Loc: Florida,USA
My neighbor directly across the street has a grandchild with ichthyosis and so do I. I have shared FIRST info and this board with her. Hopefully we can do lots of fund raisers together! Do you think this is a rare coincidence? CSG aka Grammy
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Carla Grahl aka Gram Santa Rosa Beach,Fl

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#22230 - 10/27/06 10:21 PM Re: rare condition/rarer coincidence
grammy Offline
Member

Registered: 08/01/06
Posts: 39
Loc: Florida,USA
Erin the neighbors grandchild has lamllar and Baby T maybe is CIE. He is to have more testing next year. Ethan is soooo cute! Give him a hug! CSG aka Grammy
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Carla Grahl aka Gram Santa Rosa Beach,Fl

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