First of all welcome to the board. Have you visited the FIRST foundation website at www.scalyskin.org
? The FIRST foundation can help you get in touch with other people that have the same type as ichthyosis as your young ones. You can also call them at Phone: 215-631-1411 or email firstname.lastname@example.org
I have a 7 year old daughter with Lamellar Ichthyosis, she too was born a colldian baby. When she was little we used to think she had fevers all the time also, but figured out one winter that it wasn't fevers it was her body not sweating. My daughter and lots of others can't sweat. Not being abke to sweat causes my daughter to get very red all over her body and even sometimes her skin is hot also. We use water bottles filled with cold water, cooling vest, and misters to keep her cool when out in the heat. She also drinks lots of water to make sure she doesn't dehydrate.
For her skin we use lots of different lotions. We use tazorac once to twice a week. We also use Dermal Therapy to help peel the scales off, emu oil mixed with glycerin to help stop itching and put some moister back into the skin. We also use Eucerin Plus over the top of the emu oil mix and over the tazorac. There are lots of different things people use and I am sure with everybodys posts you can find something that will work for your children.
[This message has been edited by ShaunaJ (edited August 01, 2005).]