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#19988 - 02/26/07 06:58 AM Re: sports
bambam23 Offline

Registered: 02/26/07
Posts: 6
Loc: tempe, arizona 85283
I am new to the board but I have ich..I am 23yrs old now and my experience with ich and sports while growing up was interesting.while in elementary school I could play any sport I wanted up to about the age of 17..thats when physical sports such as football,soccer etc..any kind of sport that has to do with hitting, kicking etc..became a problem. I now get open sores (wounds) on the lower part of my legs (calves/shins) and I dont know much about the type of ich ur son has but that has been my experience with my type of ich which is volgaris..and with swimming my derm told me to avoid water as much as possible which I understand now,cause growing up of course u bathe and I found there were problems everytime I did my skin would hurt really bad after even after applying lotion,actually I use aquaphor works the best out of everything I ever tried..its wonderful stuff..I hope I kind of helped. thanks

#19989 - 02/26/07 12:44 PM Re: sports
jds Offline

Registered: 12/23/05
Posts: 432
Loc: Austin, Texas
Thank you and welcome to the board. Any advice from people who actually have ichthyosis or experience with someone who has it is always very helpful. Good luck managing your skin care. I kow from my son it is much trial and error and the trial again. Have a great morning.
Tammy (caregiver)
toddler son
lamellar ichthyosis

#19990 - 03/21/07 03:23 PM Re: sports
Borednow Offline
Junior Member

Registered: 03/16/07
Posts: 4
Loc: Nottingham England
Thinking back to when I was a kid.....

Summer stuff on the grass was a real pain for me, I overheated very quickly which for me resulted in a banging headache, add that to the hayfever and what the useless docs later found out was asthma and it was no fun at all, PE teachers used to tell me I was unfit all the time and it was very depressing! It was all so bad because of THEIR lack of education, they chose not to find out if my skin condition could be the cause of my so called 'unfitness'.

Winter had its own problems with overheating and extra sore skin, but... I did have one magic moment at school, we went out one winter when I was 14 for the weekly cross-country run, freezing cold day and as usual I was at the back, this was to be a two hour run but about 20 mins into it the heavens opened and it poured down like I had never seen it before, the rain was an absolute godsend for me, within twenty mins I was at the head of the field and won the race by over ten minutes from the second place :-)) That day I proved to the whole school I was not unfit, they still didnt understand my condition but it gave me the biggest smile for weeks, at 38 I still go for a run every now and then.......but only if its raining!

Basically what I'm saying is make sure that ALL the teachers, friends parents, friends themselves, and you as the parents know what other symptoms that cant be outwardly seen can arrise, no doubt they wont be the same for everyone but so long as everyone is aware of the limits and symptoms there's no reason why your little one cant enjoy a wise variety of sports :-)


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