Well, I'm 30 and I have Lamellar Ichthyosis, an older sister (32) a younger brother (21) and a younger sister (16).
Unfortunately, I have no books to suggest but I have suggestions and examples!
Just in posting that question, I suspect you're already a supportive sister. What my sibling do for me is that they listen when I talk, they give me honest opinions when I ask for them. They tell me they love me and give me lots of hugs. That pretty much works for me. And hopefully they're doing the same things for you.
Perhaps more of what you're looking for is how to respond when he talks about his skin. I would recommend listening first, then asking questions on anything you don't understand. A real perk for me is that my mother-in-law sends me the skin care products I like every once in a while so I don't have to spend so much money on them all the time. She and my stepmom and my older sister always keep a small supply for me at their houses when I come visit. That's really nice for me as I don't have to drag all my moisturizers around when I travel to see them.
Ask him if there are any clothes that are particularly comfortable for him to wear when his skin hurts, and that's the type of thing you might consider giving him for birthdays or holidays or something.
If he's nervous about going to the dermatologist, or isn't sure he should go, offer to go with him for moral support.
Lastly, ask him if there's ever anything you can help him with, especially in regards to day to day life with his skin. He may have some ideas that I don't or would like things that I am totally unaware of. After all, men and women do tend to want varying things [img]http://www.ichthyosis.com/ubb/smile.gif
Oh, one last place to check! F.I.R.S.T.'s site www.scalyskin.org
can give you a lot more details about what type of ichthyosis your brother has and what some of the care issues are. Point out this web site to him, as well as F.I.R.S.T.'s site. Also, one thing that may be great for him if he has any interest in meeting others with ichthyosis is for him to join the support network on F.I.R.S.T. and consider going to the next conference that will be in 2004. Families are always encouraged to attend the conference and it's a very enjoyable experience for all.
Good luck and stay in touch! We're here for both your brother and you.