Hi all ..
Thought I would drop a post to this board since I was just exploring the new bulletin board here and I must say its great. I really appreciated all the hard work and effort that is put into this web site! [img]http://www.ichthyosis.com/ubb/smile.gif
I am 33 years old and was born with either EHK or CIE <doctors can't seem to make up their mind .. but I think it is EHK (Euro something or other <grins> ). Basically I have tough scales on my feet and sometimes my hands peel. My face is always red and I have a lesser reddish color over the rest of my body.
I live near Ft. Lauderdale, Florida and during summer months the tempature is really rough on me, but when I lived in NY I found during the winters my skin really hurt and down here it never hurts .. so I guess it is a trade off.
I have never met anyone else with Ichthyosis, and unfortunately wasn't able to make the last 2 FIRST conferences... but someday I hope to meet someone else with this disorder just to swap questions face-to-face. Until then if you are looking for an ichthyosis pen-pal drop me an email or ICQ me (number is in my profile).
Until the next time .. Take Care All --