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#16956 - 04/16/07 01:34 PM Missing everyone
luckelizard Offline

Registered: 02/26/03
Posts: 190
Loc: Corpus Christi, TX, USA
Just noticing how our part is a little behind on posts here.. lol I just want to keep up with everyone that has ehk.. As that is what i have as well.. I loved the skin conference this past year i believe it was the first one i went to that I actually met someone else with EHK.. and for me being my age.. It really was amazing for me. I hope everyone is doing well.. Please let me know what we are all up to now.. and what big plans we have for the summer.... just trying to keep the friendships i created and hoping to find new ones.. if your interested.. email me at.. or hope to hear from someone soon. take care..

crystal rose

#16957 - 04/16/07 02:56 PM Re: Missing everyone
Hearsay Offline


Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
I do try to check in daily. I was out of town for the last 2 weeks, so I wasn't around for a bit. But I'm back now!
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.

email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"


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