EHK has a totally different mechanism. Psoriasis kicks in when the T cells try to defend against a nonexistent invader, making the skin grow because the T cells release growth chemicals.
In EHK, the problem is that the skin grows too fast and the problem is in the 2nd to top layer of the skin, the granular layer. There is a protein in those cells called keratohyalin and we are missing one or both of the enzymes that converts the protein to keratin, which is the stuff that makes normal skin waxy and waterproof.
I don't think Raptiva will be a big help for us.
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.
email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"