Topic Options
#16513 - 09/07/03 06:22 PM Request for EHK info from Luiz Carlos in Brazil
Chandra Offline
Member

Registered: 11/20/00
Posts: 707
Loc: Grants Pass, OR
This message was originally posted on a different thread. I copied it and pasted it here in the hopes that those of you with knowledge about EHK can help Luiz and his family.
**********************
hi darly
My name is Luz Carlos from Brazil i have a dougther Emelly with 7 years old now and has EHK .
I have been to search the better tratment here or in others conuties to my doughter.
Can you describe your tratment ?
Do you use Neotigason ?
Is There others drugs same Neotigason in USA?
Here the creams have been produce in little count , so very expencivy and the familys spend much money to tratmento , but not is safifatory .
Please I need have accept the better tratment of world for my doughter.
Can you inform me ?

thenks a lot

Ps I hope understand my english.
_________________________
I am female, and was born in 1972 with Lamellar Ichthyosis.

Top
#16514 - 01/17/04 03:53 AM Re: Request for EHK info from Luiz Carlos in Brazil
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
If he hasn't gotten advice yet, I can translate anyone's posts into readable, if not grammatically correct, Portuguese.

Jennifer
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

Top
#16515 - 01/17/04 06:30 PM Re: Request for EHK info from Luiz Carlos in Brazil
Shirlil Offline
Member

Registered: 12/23/03
Posts: 22
Loc: L.A., CA USA
Hello Luz;

I am not sure if you have Aquaphor with AHA or Eucerin plus in Brazil or if you have tried them. I do not have much experience with them but I hear they work well. If you like I can send you a bottle of each to try. Do not worry about the cost of them, I will send them to you.

Here is my e-mail address, let me know: rasgari@msn.com.

Top


Copyright 2012 Ichthyosis Information