Topic Options
#16513 - 09/07/03 06:22 PM Request for EHK info from Luiz Carlos in Brazil
Chandra Offline

Registered: 11/20/00
Posts: 707
Loc: Grants Pass, OR
This message was originally posted on a different thread. I copied it and pasted it here in the hopes that those of you with knowledge about EHK can help Luiz and his family.
hi darly
My name is Luz Carlos from Brazil i have a dougther Emelly with 7 years old now and has EHK .
I have been to search the better tratment here or in others conuties to my doughter.
Can you describe your tratment ?
Do you use Neotigason ?
Is There others drugs same Neotigason in USA?
Here the creams have been produce in little count , so very expencivy and the familys spend much money to tratmento , but not is safifatory .
Please I need have accept the better tratment of world for my doughter.
Can you inform me ?

thenks a lot

Ps I hope understand my english.
I am female, and was born in 1972 with Lamellar Ichthyosis.

#16514 - 01/17/04 03:53 AM Re: Request for EHK info from Luiz Carlos in Brazil
Hearsay Offline


Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
If he hasn't gotten advice yet, I can translate anyone's posts into readable, if not grammatically correct, Portuguese.

Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.

email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

#16515 - 01/17/04 06:30 PM Re: Request for EHK info from Luiz Carlos in Brazil
Shirlil Offline

Registered: 12/23/03
Posts: 22
Loc: L.A., CA USA
Hello Luz;

I am not sure if you have Aquaphor with AHA or Eucerin plus in Brazil or if you have tried them. I do not have much experience with them but I hear they work well. If you like I can send you a bottle of each to try. Do not worry about the cost of them, I will send them to you.

Here is my e-mail address, let me know:


Copyright 2012 Ichthyosis Information