Topic Options
#16261 - 09/27/07 09:37 PM Ichthyosis Awareness Week
thehodgees Offline

Registered: 01/29/06
Posts: 130
Loc: Woodstock, ON, Canada
Hey, everyone!
Here's an article that appeared today in our local paper. I used this opportunity to not only promote the charity event that I have been planning for the past 1 1/2 years...but to raise awareness about Ichthyosis! Be sure to contact your local newspapers this upcoming week to spread the word! Be sure to ask to speak with the reporter that covers "Health" issues.
Sarah (and Ema)

[This message has been edited by thehodgees (edited March 07, 2008).]
Craig and Sarah Hodgkinson (aka Dad and Mom to Matt and Ema)
Ema has been diagnosed with Congenital Ichtyosiform Erythroderma (CIE)

#16262 - 10/01/07 03:38 AM Re: Ichthyosis Awareness Week
TMPOL_dup1 Offline

Registered: 07/12/07
Posts: 138
Loc: Collingwood, Ontario, Canada
Great Idea Sarah, I never thought of that. I will call the paper tomorrow and see if they want to come over for an interview. The Collingwood paper is really small, but what a awesome way to make this little town aware!

Myles' Mom
Myles born a collodion baby
Lamellar Ichthyosis


Moderator:  Laura Phillips 

Copyright 2012 Ichthyosis Information