Everyone's skin varies, even if the diagnosis is the same. So, here is my story.
Marc has lamellar and he is now 9 years old.
I only used 100% cotton on him during the first year of his life. Since then, he has worn all types of fabrics and we have never had a problem. His skin does not, and it never has, torn due to clothing or the types of diapers he has worn. He has also never had any kind of open sores.
As far as the transdermal water loss....none here. Marc drinks a lot of water, urinates fequently, and does not get cold in the winter (he RARELY gets cold! [img]http://www.ichthyosis.com/ubb/smile.gif
Ayla looks great! I am no expert, but from looking at her photos, I would say that she has CIE. Most of the people I have met at the conferences that I have attended (4 of them so far!! [img]http://www.ichthyosis.com/ubb/smile.gif
[/img] ) who have CIE, look like your daughter...reddish skin and not the thick, scales like lamellar.
So, I hope that helps you. Keep up whatever you are doing and I am sure she will be fine. Just because others experience different "things" with a particular type of ichthyosis, doesn't necessarily mean that your daughter will, too.
Just enjoy her-let her be a kid and you be a "regular" mom, not worrying about "skin stuff"- because before you know it, she will be 9 years old, in the 4th grade and not as willing to give you kisses anymore. (Do you think I am speaking from experience!! LOL)