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#16102 - 07/26/06 10:15 AM A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
There's a wash/leave-on lotion called Detente
that aside from giving relief from the symptoms has been an incredible preventative.
Honestly, I want to help and I work with a woman who is totally amazed at the results!!
I will send out samples.
Please let me know
I apologize if I'm crossing any boundaries here but I began marketing this product for Darier's, eczema and it turns out that it's been a miracle in this woman's life who has CIE.

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#16103 - 07/26/06 10:53 AM Re: A preventative
jds Offline
Member

Registered: 12/23/05
Posts: 432
Loc: Austin, Texas
Where can you purchase it online?
_________________________
Tammy (caregiver)
******************
toddler son
lamellar ichthyosis

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#16104 - 07/26/06 11:30 AM Re: A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
We do have a website but I would prefer you get them directly from me. I keep the track of the results for most of the skin disorders and your feedback is very important so I've always done that on a 1-1 email basis. If you give me your address I will send some samples. I can also give you our website address to check it out if you'd like.

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#16105 - 07/26/06 04:49 PM Re: A preventative
shandra Offline
Dakota's mom Lamellar
Member

Registered: 10/07/05
Posts: 349
Loc: Cape Coral, FL
cinda

I would be interested in a sample. My son has Lamellar and is 10 months, would this be something ok to try on him?

Thanks Shandra

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#16106 - 07/26/06 07:50 PM Re: A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
Hi Shandra. I have an email out to Dr. Zasloff about infants using Detente. I just want to double check altho I'm sure it's OK.
I'll let you know as soon as I hear from him.
Thanks

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#16107 - 07/26/06 10:07 PM Re: A preventative
gryphon Offline
Member

Registered: 04/12/06
Posts: 298
Loc: Alberta, Canada
Hi Cinda,

From what I have read, Detente would be a good product for skin rashes or lesions like with eczema or Darier's. However, for ichthyosis, I think that Detente would be a better cleanser than a lotion. Detente contains an excellent surfactant/cleansing ingredient while also claiming to increase the anti-microbial barrier of the skin. But as a lotion, water and glycerin seem to be the only 'moisturizing' ingredients. So looking strictly at the ingredients I'm not convinced it will, *by itself*, be a suitable lotion for ichthyosis but it certainly may be a great body wash. Combined with other lotions it may work well.

Can you detail how your customer with CIE has incorporated it into her treatment regimen?

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#16108 - 07/27/06 06:43 AM Re: A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
Quote:
Originally posted by cinda:
Hi Shandra. I have an email out to Dr. Zasloff about infants using Detente. I just want to double check altho I'm sure it's OK.
I'll let you know as soon as I hear from him.
Thanks

Hi Shandra. I spoke to Dr. Zasloff and it's completely safe. Let me know and I will send you the samples.

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#16109 - 07/27/06 06:48 AM Re: A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
Quote:
Originally posted by gryphon:
Hi Cinda,

From what I have read, Detente would be a good product for skin rashes or lesions like with eczema or Darier's. However, for ichthyosis, I think that Detente would be a better cleanser than a lotion. Detente contains an excellent surfactant/cleansing ingredient while also claiming to increase the anti-microbial barrier of the skin. But as a lotion, water and glycerin seem to be the only 'moisturizing' ingredients. So looking strictly at the ingredients I'm not convinced it will, *by itself*, be a suitable lotion for ichthyosis but it certainly may be a great body wash. Combined with other lotions it may work well.

Can you detail how your customer with CIE has incorporated it into her treatment regimen?


She started off using it as just a wash. After a week or so she used it as a wash/leave-on. I know everyone is different but Detente has been amazing for her and has worked as a preventative. I believe Detente is the only product she used now. It can't hurt to try

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#16110 - 07/27/06 11:10 AM Re: A preventative
libby Offline
Member

Registered: 02/25/05
Posts: 356
Loc: USA
I wouldn't mind trying it on my 10 year old who has CIE.
My email address is mmarkonic1@msn.com.
Thanks,
Lib

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#16111 - 07/27/06 01:14 PM Re: A preventative
shandra Offline
Dakota's mom Lamellar
Member

Registered: 10/07/05
Posts: 349
Loc: Cape Coral, FL
Cinda

Thanks I will email you my address.

Shandra

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#16112 - 08/06/06 06:43 PM Re: A preventative
Brennansmom Offline
Member

Registered: 01/06/06
Posts: 13
Loc: Shelby,Oh,US
my son has cbie. I would love tro try it! He gets blisters but his skin is also very very dry so i maybe this stuff is worth a try! My email is jdsmom_012002@yahoo.com Thank you Denise
_________________________
Denise

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#27778 - 06/29/11 05:42 AM Re: A preventative [Re: Brennansmom]
Gaby Offline
New member

Registered: 06/29/11
Posts: 1
I'm 17 and have darier's disease. This was posted about 5 years ago now, but if i am still able to have some samples i would love some. My e-mail is gabzy_11@hotmail.com

Thankyou smile

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#27886 - 08/14/11 12:16 AM Re: A preventative [Re: shandra]
cschaap Offline
Member

Registered: 07/06/09
Posts: 71
Loc: Crown Pt., Indiana
I would like to try it on my son. He is 2 years old and has Lamellar. cschaap17@hotmail.com
Thanks,
Candace
_________________________
My name is Candace. My son, kenny was born May 19, 2009 diagnosed with Lamellar Ichthyosis. My daughter Chloe was born June 4, 2011 unaffected.

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#27891 - 08/17/11 10:13 PM Re: A preventative [Re: cschaap]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
The original post is from 2006. I highly doubt that the poster will be here again.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#28656 - 10/15/12 11:43 AM Re: A preventative [Re: cinda]
Cincygal Offline
New member

Registered: 10/15/12
Posts: 1
Did any of you who tried this product have successful results? My uncle asked me to research this product for him and that's how I came upon this forum so I was just wondering if it is something that might help. He has the lamellar type.

Thanks in advance!

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#28839 - 03/02/13 09:24 PM Re: A preventative [Re: cinda]
TMPOL Offline
Member

Registered: 07/30/08
Posts: 44
Loc: Collingwood, Ontario, Canada
Hi Cinda,
I would be interested in seeing it and checking with his derm before I use it. We are in Canada, but we have a cottage in NY State that you could ship to save costs.
My email address is snowrider5@hotmail.com
Thank you in advance.
_________________________
Tara, Rene and Myles
Myles born May 22nd 2007
Lamellar Ichthyosis

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#29010 - 09/05/13 02:48 AM Re: A preventative [Re: cinda]
Clair1 Offline
Member

Registered: 08/23/13
Posts: 8
Loc: USA
Could I possibly try this for a newborn?
my email address is starkey007@gmail.com

Thanks so much

H

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#29011 - 09/05/13 02:51 AM Re: A preventative [Re: cinda]
Clair1 Offline
Member

Registered: 08/23/13
Posts: 8
Loc: USA
Could I possibly try this for a newborn?
my email address is starkey007@gmail.com

Thanks so much

H

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