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#16112 - 08/06/06 06:43 PM Re: A preventative
Brennansmom Offline
Member

Registered: 01/06/06
Posts: 13
Loc: Shelby,Oh,US
my son has cbie. I would love tro try it! He gets blisters but his skin is also very very dry so i maybe this stuff is worth a try! My email is jdsmom_012002@yahoo.com Thank you Denise
_________________________
Denise

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#27778 - 06/29/11 05:42 AM Re: A preventative [Re: Brennansmom]
Gaby Offline
New member

Registered: 06/29/11
Posts: 1
I'm 17 and have darier's disease. This was posted about 5 years ago now, but if i am still able to have some samples i would love some. My e-mail is gabzy_11@hotmail.com

Thankyou smile

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#27886 - 08/14/11 12:16 AM Re: A preventative [Re: shandra]
cschaap Offline
Member

Registered: 07/06/09
Posts: 71
Loc: Crown Pt., Indiana
I would like to try it on my son. He is 2 years old and has Lamellar. cschaap17@hotmail.com
Thanks,
Candace
_________________________
My name is Candace. My son, kenny was born May 19, 2009 diagnosed with Lamellar Ichthyosis. My daughter Chloe was born June 4, 2011 unaffected.

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#27891 - 08/17/11 10:13 PM Re: A preventative [Re: cschaap]
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
The original post is from 2006. I highly doubt that the poster will be here again.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#28656 - 10/15/12 11:43 AM Re: A preventative [Re: cinda]
Cincygal Offline
New member

Registered: 10/15/12
Posts: 1
Did any of you who tried this product have successful results? My uncle asked me to research this product for him and that's how I came upon this forum so I was just wondering if it is something that might help. He has the lamellar type.

Thanks in advance!

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#28839 - 03/02/13 09:24 PM Re: A preventative [Re: cinda]
TMPOL Offline
Member

Registered: 07/30/08
Posts: 44
Loc: Collingwood, Ontario, Canada
Hi Cinda,
I would be interested in seeing it and checking with his derm before I use it. We are in Canada, but we have a cottage in NY State that you could ship to save costs.
My email address is snowrider5@hotmail.com
Thank you in advance.
_________________________
Tara, Rene and Myles
Myles born May 22nd 2007
Lamellar Ichthyosis

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#29010 - 09/05/13 02:48 AM Re: A preventative [Re: cinda]
Clair1 Offline
Member

Registered: 08/23/13
Posts: 8
Loc: USA
Could I possibly try this for a newborn?
my email address is starkey007@gmail.com

Thanks so much

H

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#29011 - 09/05/13 02:51 AM Re: A preventative [Re: cinda]
Clair1 Offline
Member

Registered: 08/23/13
Posts: 8
Loc: USA
Could I possibly try this for a newborn?
my email address is starkey007@gmail.com

Thanks so much

H

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