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#16102 - 07/26/06 11:15 AM A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
There's a wash/leave-on lotion called Detente
that aside from giving relief from the symptoms has been an incredible preventative.
Honestly, I want to help and I work with a woman who is totally amazed at the results!!
I will send out samples.
Please let me know
I apologize if I'm crossing any boundaries here but I began marketing this product for Darier's, eczema and it turns out that it's been a miracle in this woman's life who has CIE.

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#16103 - 07/26/06 11:53 AM Re: A preventative
jds Offline
Member

Registered: 12/23/05
Posts: 432
Loc: Austin, Texas
Where can you purchase it online?
_________________________
Tammy (caregiver)
******************
toddler son
lamellar ichthyosis

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#16104 - 07/26/06 12:30 PM Re: A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
We do have a website but I would prefer you get them directly from me. I keep the track of the results for most of the skin disorders and your feedback is very important so I've always done that on a 1-1 email basis. If you give me your address I will send some samples. I can also give you our website address to check it out if you'd like.

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#16105 - 07/26/06 05:49 PM Re: A preventative
shandra Offline
Dakota's mom Lamellar
Member

Registered: 10/07/05
Posts: 349
Loc: Cape Coral, FL
cinda

I would be interested in a sample. My son has Lamellar and is 10 months, would this be something ok to try on him?

Thanks Shandra

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#16106 - 07/26/06 08:50 PM Re: A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
Hi Shandra. I have an email out to Dr. Zasloff about infants using Detente. I just want to double check altho I'm sure it's OK.
I'll let you know as soon as I hear from him.
Thanks

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#16107 - 07/26/06 11:07 PM Re: A preventative
gryphon Offline
Member

Registered: 04/12/06
Posts: 298
Loc: Alberta, Canada
Hi Cinda,

From what I have read, Detente would be a good product for skin rashes or lesions like with eczema or Darier's. However, for ichthyosis, I think that Detente would be a better cleanser than a lotion. Detente contains an excellent surfactant/cleansing ingredient while also claiming to increase the anti-microbial barrier of the skin. But as a lotion, water and glycerin seem to be the only 'moisturizing' ingredients. So looking strictly at the ingredients I'm not convinced it will, *by itself*, be a suitable lotion for ichthyosis but it certainly may be a great body wash. Combined with other lotions it may work well.

Can you detail how your customer with CIE has incorporated it into her treatment regimen?

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#16108 - 07/27/06 07:43 AM Re: A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
Quote:
Originally posted by cinda:
Hi Shandra. I have an email out to Dr. Zasloff about infants using Detente. I just want to double check altho I'm sure it's OK.
I'll let you know as soon as I hear from him.
Thanks

Hi Shandra. I spoke to Dr. Zasloff and it's completely safe. Let me know and I will send you the samples.

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#16109 - 07/27/06 07:48 AM Re: A preventative
cinda Offline
Member

Registered: 07/26/06
Posts: 5
Loc: Phila., PA. USA
Quote:
Originally posted by gryphon:
Hi Cinda,

From what I have read, Detente would be a good product for skin rashes or lesions like with eczema or Darier's. However, for ichthyosis, I think that Detente would be a better cleanser than a lotion. Detente contains an excellent surfactant/cleansing ingredient while also claiming to increase the anti-microbial barrier of the skin. But as a lotion, water and glycerin seem to be the only 'moisturizing' ingredients. So looking strictly at the ingredients I'm not convinced it will, *by itself*, be a suitable lotion for ichthyosis but it certainly may be a great body wash. Combined with other lotions it may work well.

Can you detail how your customer with CIE has incorporated it into her treatment regimen?


She started off using it as just a wash. After a week or so she used it as a wash/leave-on. I know everyone is different but Detente has been amazing for her and has worked as a preventative. I believe Detente is the only product she used now. It can't hurt to try

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#16110 - 07/27/06 12:10 PM Re: A preventative
libby Offline
Member

Registered: 02/25/05
Posts: 356
Loc: USA
I wouldn't mind trying it on my 10 year old who has CIE.
My email address is mmarkonic1@msn.com.
Thanks,
Lib

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#16111 - 07/27/06 02:14 PM Re: A preventative
shandra Offline
Dakota's mom Lamellar
Member

Registered: 10/07/05
Posts: 349
Loc: Cape Coral, FL
Cinda

Thanks I will email you my address.

Shandra

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