Topic Options
#15003 - 01/21/08 10:50 PM Aquaphor
Lisette Offline
Member

Registered: 09/19/07
Posts: 12
Loc: De Lier, Westland,The Netherla...
My daughter Nicky is just diagnosed with Netherton syndrom. She is now 9 months. I have read that Aquaphor is very good for ichthy or NS. I read about Aquaphor a lot on this forum. But in our country or the EU we cannot buy this creme. Maybe I can buy a creme here that has the same ingredients. On the net I found some ingredients but not the % or all the ingredients. My drugstore can maybe make this kind of creme. They want to try....

Can someone please write me what the label/etiket says and the exact % , I'll be very happy with this information.
Thank you,
Lisette

------------------
Lisette
daughter Robin 07-10-04
daughter Nicky 28-03-07 (ichthyosis)

[This message has been edited by Lisette (edited January 21, 2008).]
_________________________
Lisette
daughter Robin 07-10-04
daughter Nicky 28-03-07 (NS)

Top
#15004 - 01/22/08 12:35 AM Re: Aquaphor
Elizas mom08 Offline
Member

Registered: 01/18/08
Posts: 55
Loc: Heartwell Nebraska US
Hi Lisette my daughter has cie and we use Eucerin calming creme for her itching and we really like it we also put Equate Dry skin cream with added moistuizers we also mix glycerin in with , with a hand mixer that works great on her plus it's alot cheaper good luck with everything .

------------------
mom of Eliza possible C.I.E. 4-9-07
Brady 9-10-01
Hunter 7-11-05
_________________________
Lacy,Elizas mom possible C.I.E. 4-9-07
Brady 9-10-01
Hunter 7-11-05

Top
#15005 - 01/22/08 02:51 AM Re: Aquaphor
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Lisette, Aquaphor is 41% petrolatum + mineral oil + ceresin + lanolin alcohol. The label doesn't say the percentages of the latter ingredients, but in the US, labels are listed in order of concentration, so it is probably something close to 30% mineral oil, 20% ceresin and 9% lanolin alcohol.

I found the MSDS sheet for it, but that doesn't list the ingredients. You could try emailing the company and see if they can ship you some or see if they have a European distributor.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

Top
#15006 - 01/23/08 02:34 PM Re: Aquaphor
TMPOL_dup1 Offline
Member

Registered: 07/12/07
Posts: 138
Loc: Collingwood, Ontario, Canada
Hi Lisette,

I am in Canada and the ingredients on the Aquaphor here are different. They are listed as

Petrolatum, mineral oil, mineral wax, wool wax alcohol
the quantities are not listed either. It is distributed in Canada through a company called Beiersdorf Canada Inc.
Perhaps they have a EU office as well?

Hope that this helps
Tara

------------------
Myles' Mom
Myles born a collodion baby
Lamellar Ichthyosis
_________________________
Myles' Mom
Myles born a collodion baby
Lamellar Ichthyosis

Top
#15007 - 01/30/08 09:30 PM Re: Aquaphor
Lisette Offline
Member

Registered: 09/19/07
Posts: 12
Loc: De Lier, Westland,The Netherla...
Thank you all for replying!!

I have found a similar creme to aquaphor in our drugstore. I have been using this creme for a week now and here face is not so red anymore, she is looking a lot better :-))))

Thanks again,


------------------
Lisette
daughter Robin 07-10-04
daughter Nicky 28-03-07 (NS)

[This message has been edited by Lisette (edited January 30, 2008).]
_________________________
Lisette
daughter Robin 07-10-04
daughter Nicky 28-03-07 (NS)

Top

Moderator:  marcsmom, Sideshow_bob 

Copyright 2012 Ichthyosis Information