Hi and welcome to the board! My daughter, Claire, is 12 and has nb-CIE. She was diagnosed when she was 5. Until then, we were completely in the dark.
What lotions/creams are you currently using? When Claire was a baby we used a lot of Cetaphil and aquaphor. Oatmeal baths were also helpful. Now we use Lachydrin mixed with glycerin and dead sea salt for bathing. I think that because she is entering puberty, her skin is getting a little bit better? I am hoping!!!!
Do you have a good derm. in your area? It's really hard finding someone who knows anything about ich due to the fact that it is so rare. I know that when I go to the dr.'s, it seems like I am educating them!!
If you ever have any questions, here is the place to ask or if you are having a bad day, venting is totally acceptable and understood!!
If you want to email me, I would love to chat! We are still learning and experimenting with new things. Some days are good while others are horrible. We still battle with build-up in her ears and her scalp is so dry and flaky. But, other than that, the dry winter air isn't posing too much of a problem, believe it or not!
Mom to Claire age 12 nb-CIE
(I have 2 other daughters that are unaffected)