Last fall, during Ich. Awareness week, I had desperately wanted to plan some type of F.I.R.S.T. fundraiser, but, life is crazy, and I really can't wisely attempt this on my own. So, what I wanna know is, are any of you interested in getting together sometime this summer (either July or August) and trying to plan an event (to take place during Icth Awareness Week) together?? I am feeling a bit apprehensive about this (because we are really busy all the time, and it's a big commitment; it's not like I don't already have a crazy life [img]http://www.ichthyosis.com/ubb/wink.gif
[/img]), but I am also really feeling a real burden and have for a while. So, anyone feel the same and wanting to share the burden? Let me know! You can email me or just post here.
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Mom to: Joshua (7yrs) and Matthew (3yrs) both affected with x-linked ichthyosis