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#13864 - 04/17/07 06:42 PM Chicago-Area Parents
LauraAnn Offline
Member

Registered: 04/01/04
Posts: 220
Loc: Chicago, IL, USA
Hi!
Last fall, during Ich. Awareness week, I had desperately wanted to plan some type of F.I.R.S.T. fundraiser, but, life is crazy, and I really can't wisely attempt this on my own. So, what I wanna know is, are any of you interested in getting together sometime this summer (either July or August) and trying to plan an event (to take place during Icth Awareness Week) together?? I am feeling a bit apprehensive about this (because we are really busy all the time, and it's a big commitment; it's not like I don't already have a crazy life [img]http://www.ichthyosis.com/ubb/wink.gif[/img]), but I am also really feeling a real burden and have for a while. So, anyone feel the same and wanting to share the burden? Let me know! You can email me or just post here.



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*Laura
Mom to: Joshua (7yrs) and Matthew (3yrs) both affected with x-linked ichthyosis
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*Laura
Mom to: Joshua (9yrs) and Matthew (4yrs) both affected with recessive x-linked ichthyosis

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#13865 - 04/18/07 02:00 AM Re: Chicago-Area Parents
shandra Offline
Dakota's mom Lamellar
Member

Registered: 10/07/05
Posts: 349
Loc: Cape Coral, FL
LauraAnn

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#13866 - 04/18/07 02:00 AM Re: Chicago-Area Parents
shandra Offline
Dakota's mom Lamellar
Member

Registered: 10/07/05
Posts: 349
Loc: Cape Coral, FL
LauraAnn

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#13867 - 04/18/07 02:02 AM Re: Chicago-Area Parents
shandra Offline
Dakota's mom Lamellar
Member

Registered: 10/07/05
Posts: 349
Loc: Cape Coral, FL
LauraAnn
That sounds great. I would of been interested in doing something with ya, but we just moved in March from Algonquin, IL to Florida. I thought I saw someone post here a couple of times that was in McHenry. Maybe they will.
GOOD lUCK!!!

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#13868 - 04/18/07 02:06 PM Re: Chicago-Area Parents
melissa Offline
Member

Registered: 07/09/03
Posts: 14
Loc: janesville WI USA
I would love too also. I live in Janesville Wisconsin!
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Melissa

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#13869 - 04/18/07 02:38 PM Re: Chicago-Area Parents
Beth Engerman Offline
Member

Registered: 08/23/00
Posts: 106
Loc: Indianapolis, IN USA
I will come up from Indianapolis. I love any reasone to come the Chicago!

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"Our greatest fear is not that we are inadequte; but that we are powerful beyond all measure." Nelson Mandela
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"Our greatest fear is not that we are inadequte; but that we are powerful beyond all measure." Nelson Mandela

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#13870 - 04/18/07 11:35 PM Re: Chicago-Area Parents
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
I'm in Naperville, and I know there's a family in Mokena here. I also met a lady in Aurora.
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#13871 - 05/07/07 03:32 AM Re: Chicago-Area Parents
ChicagoLaura Offline
Member

Registered: 05/01/07
Posts: 91
Loc: Chicago
I am new to this site and would be interested in meeting some other parents in my area. I live on the Southside of Chicago and have a 15 month old daughter with CIE.

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#13872 - 05/13/07 02:18 PM Re: Chicago-Area Parents
LauraAnn Offline
Member

Registered: 04/01/04
Posts: 220
Loc: Chicago, IL, USA
Quote:
Originally posted by ChicagoLaura:
I am new to this site and would be interested in meeting some other parents in my area. I live on the Southside of Chicago and have a 15 month old daughter with CIE.



Email me, I'm on the north side (uptown).
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*Laura
Mom to: Joshua (9yrs) and Matthew (4yrs) both affected with recessive x-linked ichthyosis

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#13873 - 05/13/07 02:21 PM Re: Chicago-Area Parents
LauraAnn Offline
Member

Registered: 04/01/04
Posts: 220
Loc: Chicago, IL, USA
To all those who have replied: I will email you sometime in July and we can all come up with a good time to get together to discuss this? Does this sound good?
Anyone else interested??
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*Laura
Mom to: Joshua (9yrs) and Matthew (4yrs) both affected with recessive x-linked ichthyosis

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