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#13846 - 04/17/07 05:21 AM MRSA infections
momof3 Offline
Member

Registered: 04/12/07
Posts: 209
Loc: SJ, CA USA
As MRSA (Methacillin Resistant Staph Aureous) is a somewhat new problem, I'm curious if anyone is battling recurrent infections such as these with your children or yourself. Our son is undiagnosed (didn't test gene positive), but we believe he has NS. About 8 months ago I ended up with what I thought was a terrible bug bite on my face. It continued to get bigger, and by a couple of days later, my whole chin swelled up and my face felt paralyzed. By the time I got to the doctor I had a 102 fever, and had to have my chin immediately lanced (it was a cellulitis). Once I found out it was MRSA, I couldn't figure out how it happened. It dawned on me that my son's head is always in contact with my chin, when I rock him, dress him, etc.. So I asked the pediatrician to culture him and sure enough he tested positive for MRSA. It's been a battle ever since (I'm not the only one who has been infected in the family since then). He's already become resistant to two antibiotics, and the minute he's off his, he immediately starts becoming infected again. We can't figure out how the infection keeps coming back unless it's under his fingernails or unless the antibiotic isn't totally erradicating it (we've also all had nasal swabs, as staph generally exists in the nose). The doctors seem very perplexed by how to handle this. Said they've never dealt with someone with skin like our son's. Any suggestions? (not to mention that we do bathe him in bleach water baths (2tsp/gallon) in order to try to keep it at bay. It's not very effective, and it's so harsh on his skin. It's been so stressful. Any input would be greatly appreciated!

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#13847 - 04/17/07 05:56 AM Re: MRSA infections
Francesca Offline
Member

Registered: 01/16/06
Posts: 94
Loc: Brisbane, Australia
Our daughter, Lucia, has NS and has had many a staph infection, including MRSA.She picked them all up in hospital where she was for the first 8 months of life(due to continual infections). We were told to use anti-bacterial wash for our bodies and hair, and also used Bactroban inside the nostrils - this we kept up for about 2months. Since removing her from the hospital environment and caring for her at home she has been staph-free so far(she is now 18months old); if we have to visit the ED they put her in a separate consult room due to the warning on her files. I use a few drops of teatree oil in her bath everyday(trying where possible to use some natural alternatives!)and so far we have kept further skin infections at bay. I understand your concern and stress - by memory Luica was on Gentamycin(sp?)for staphs, but I think they tried all the 'mycins' initially.
However confusing and frustrating this may seem, remember you are not alone with your distress - please feel free to email me if you would like to chat further...

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#13848 - 04/17/07 07:53 AM Re: MRSA infections
Francesca Offline
Member

Registered: 01/16/06
Posts: 94
Loc: Brisbane, Australia
Hi again,

Just noticed that you, Becky & Courtney have had a great long chat (it pays to actually read the posts in order!!!) I am hopeless re: replying in the a decent timeframe and blame it on the hours we are ahead over here and a long bout of sleep deprivation!!! So apologies for not saying hi earlier...Lucia has had a slightly different time of NS as she had have a button put in for feeding and now she has been also diagnosed with Eosinophilic Osophagitis - yup, another exotic name to roll off the tongue, suffice to say it plays havoc with any feeding attempts - she brings up mucous all day and all night as well as the precious calorie-laden formula. Its been over 4 months now and I am at my wits end as no treatment so far is having any postive result....anyway, that is another story.
Like Julia, Lucia is almost walking, but no crawling. I still need to peel all her face every morning(skin grows over eyes and nostrils) and the scalp remains a big problem. Her limbs and body differ from day to day - very bizarre, but mainly flaky and a few red spots. Her face is always 'rosy' and there seems to be a defined line under her chin where the not-so-red skin starts! Nails need to be cut every other day(joy of joys!) and Lucia had ALL her teeth as of last week! My kitchen is like an apothecary - chinese herbs, fish oils, natural supplements and anti-inflams, probiotics etc. She is very bright and attentive, and no problems with eyes, altho' I have her ears cleaned at ENT every month. She also sees a feed team, speech therapist( as she doesn't eat orally there is little lateral tongue movement) OT,eye specialist, ped, derm and gastro but she is the first case of NS at the hospital we attend so everyone is 'flying by the seat of their pants' as it were - the button complicated matters for her skin(another bout of MRSA after surgery)and hypernatremia and now the EO has made matters even more interesting. She weighs just over 8kg and is 75.5cm at 18 months....oh, and comment of the week(there are always plenty) "Gee, have you thought of trying moisturiser on her?"
Talking of which I use stuff similar to Aquaphor(paraffin-based)and Papaw ointment during the day with Eucerin at night. I also massage her regularly with EPO and Vit E oil. Not many of the US products are available here, so I am trialling as we go. As with Dane, Lucia tolerates all the above with a big toothy smile, plenty of waving and a wonderfully sunny disposition.

Also just remembered the name of the antibiotic she was on for MRSA, Flucloxacillin.

That was a very quick overview but it may shed further light on some of Dane's symptoms. Anyway, I look forward to chatting to you and exchanging tips for care and coping.

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#13849 - 04/17/07 10:45 AM Re: MRSA infections
Deidra Offline
Member

Registered: 03/08/02
Posts: 162
Loc: Lancaster, Ohio USA
Hello,
My son who is 14 and has EHK was treated this winter for MRSA. He has had staph infections off and on all his life but this is the first one that was cultured and turned out to be MRSA. We went to derm because he was getting these bumps which were really itchy. (2 of the rest of us in the family are getting these bumps also) We wanted to figure out what they were and get rid of them. (We still haven't figured it out.) The night before the scheduled derm appt., Evan told me he thought he had an infection. Didn't look quite the same as his "usual" infections. They were still pus filled blisters but there were a bunch of tiny ones all over him. The itchy bumps came way before this though. Anyway, they cultured for MRSA. Put him on dioxycyclene for 2 weeks. Bumps were still there. They cultured again and it came back negative for MRSA but I think they didn't culture in the right spot. At that time, we treated the entire family for scabies. We were still trying to figure out the itchy bumps. The bumps were still there. We went to a different derm for a second opinion. Still trying to figure out why he was still itchy. I know we are blessed but Evan has never been very itchy. Anyway, the new derm did cultures in 5 different places. Once again, it cultured positive for MRSA. He put him on tetracycline for a month. 1000 mg. a day. Now he seems to be MRSA free. It has been about 3 weeks since he finished the antibiotic.
We still don't have the answer on the itchy bumps our family is plagued with but are still hoping for some positive answers. Evan never did get rid of his itchy bumps, even on day 30 of his antibiotic. I just can't think they are connected to MRSA. I am also having a hard time directly relating them to his EHK.
Good Luck with your plight. I'm hoping we have MRSA out of the house at least for now.
Deidra

[This message has been edited by Deidra (edited June 20, 2007).]
_________________________
Dee

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#13850 - 04/17/07 02:58 PM Re: MRSA infections
Curtise Offline
Member

Registered: 05/16/06
Posts: 115
Loc: Sheffield, UK
Hi there,
My daughter Nina is 15 months with EHK and had her first bout of infections this year. She had both staph and strep, not MRSA, but I thought I'd post because we had the same problem of oral antibiotics clearing it quickly, but the infection returned as soon as the course was finished.

We were all swabbed nasally, as the thinking was that we might be reinfecting her, but the rest of the family were all clear. The 3rd infection was treated with Bactroban topically and nasally, and since then we have instituted a more careful antimicrobial regime. We are trialing using Octenisan, an antimicrobial body wash actually designed for MRSA, on a 5 days on/5 days off basis. On the days we aren't using Octenisan, we use Dermol 600 or Oilatum Plus in the bath.

We have never tried bleach in the bath, although I know many on this board swear by it, and FIRST's medical board recommend it too. Our dermatologists in the UK are really opposed to the idea, and I have been concerned about the harshness and potential drying effect, so we've gone with the Octenisan. I can only say that so far, it seems to be working although I do think it too is quite drying on Nina's skin, and I'm hoping we can reduce the frequency over time.

The plan for any future infections is to alternate between Bactroban topically and Clarythromycin (sp?) orally, which we haven't used yet but which was recommended by our derm as good for treatment-resistant infections.

Hope this helps, good luck, feel free to email if you'd like. I know how difficult and upsetting severe skin infections can be, and when it keeps coming back, it's extra tough.

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#13851 - 04/17/07 10:30 PM Re: MRSA infections
Deidra Offline
Member

Registered: 03/08/02
Posts: 162
Loc: Lancaster, Ohio USA
Hi again,
Evan battled infections nearly every winter when he was younger. Not MRSA. He would be off antibiotic for a week and back it would come. Finally about fifth grade, he went two whole years infection free.
Deidra
_________________________
Dee

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#13852 - 04/18/07 04:18 AM Re: MRSA infections
momof3 Offline
Member

Registered: 04/12/07
Posts: 209
Loc: SJ, CA USA
Hi Francesca,

Thanks for your reply and for introducing yourself and your daughter, Lucia! I sympathize with all you've been through. It's so frustrating to have doctors and hospital staff look at you as if you're supposed to give them the answers. We've had similar experiences, and funny, we also had someone ask us if we thought about using moisturizers (more than once). I can't tell you how many times we've gotten the sunburn comment. One very well known doctor told us, "Well, I don't know what he has, but I'll never forget him..." Wow, that was really inspiring, and extremely helpful! Glad we drove @600 miles one way for that!

Our kitchen looks like a pharmacy as well. The probiotics really should help Lucia. We give Dane a large amount (25 billion cfu/day). He used to reflux a lot, and now he almost never does unless he's on an antibiotic. At those times we increase it to 50 billion cfu/day, and it really seems to help. Stay hopeful... things will get better. I know it's hard to do when you're so stressed and exhausted, but remember, our children are natural born fighters! It sounds like you're giving her wonderful care.

As for the MRSA, I'm sure the hospital is where Dane first picked it up, too. We'll give the tea tree oil a try. A friend of mine just recommended that, but I wasn't sure how someone with a skin condition would handle it. Many ppl replied to my initial MRSA note, so instead of repeating myself, I'll continue this note there! Looking forward to hearing from you again soon.


Quote:
Originally posted by Francesca:
Hi again,

Just noticed that you, Becky & Courtney have had a great long chat (it pays to actually read the posts in order!!!) I am hopeless re: replying in the a decent timeframe and blame it on the hours we are ahead over here and a long bout of sleep deprivation!!! So apologies for not saying hi earlier...Lucia has had a slightly different time of NS as she had have a button put in for feeding and now she has been also diagnosed with Eosinophilic Osophagitis - yup, another exotic name to roll off the tongue, suffice to say it plays havoc with any feeding attempts - she brings up mucous all day and all night as well as the precious calorie-laden formula. Its been over 4 months now and I am at my wits end as no treatment so far is having any postive result....anyway, that is another story.
Like Julia, Lucia is almost walking, but no crawling. I still need to peel all her face every morning(skin grows over eyes and nostrils) and the scalp remains a big problem. Her limbs and body differ from day to day - very bizarre, but mainly flaky and a few red spots. Her face is always 'rosy' and there seems to be a defined line under her chin where the not-so-red skin starts! Nails need to be cut every other day(joy of joys!) and Lucia had ALL her teeth as of last week! My kitchen is like an apothecary - chinese herbs, fish oils, natural supplements and anti-inflams, probiotics etc. She is very bright and attentive, and no problems with eyes, altho' I have her ears cleaned at ENT every month. She also sees a feed team, speech therapist( as she doesn't eat orally there is little lateral tongue movement) OT,eye specialist, ped, derm and gastro but she is the first case of NS at the hospital we attend so everyone is 'flying by the seat of their pants' as it were - the button complicated matters for her skin(another bout of MRSA after surgery)and hypernatremia and now the EO has made matters even more interesting. She weighs just over 8kg and is 75.5cm at 18 months....oh, and comment of the week(there are always plenty) "Gee, have you thought of trying moisturiser on her?"
Talking of which I use stuff similar to Aquaphor(paraffin-based)and Papaw ointment during the day with Eucerin at night. I also massage her regularly with EPO and Vit E oil. Not many of the US products are available here, so I am trialling as we go. As with Dane, Lucia tolerates all the above with a big toothy smile, plenty of waving and a wonderfully sunny disposition.

Also just remembered the name of the antibiotic she was on for MRSA, Flucloxacillin.

That was a very quick overview but it may shed further light on some of Dane's symptoms. Anyway, I look forward to chatting to you and exchanging tips for care and coping.

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#13853 - 04/18/07 04:43 AM Re: MRSA infections
momof3 Offline
Member

Registered: 04/12/07
Posts: 209
Loc: SJ, CA USA
Thank you everyone for your responses. Deidra, your story sounds very familiar. What I didn't mention in my initial post is that what made me suspicious that Dane had it was that he was much more miserable (much itchier) than normal, and that he had little cystic looking acne bumps on his head. On his back and arms little pustules started popping up. He'd lay on the carpet, wiggling around like a fish out of water in order to scratch himself! The new doctor I had started taking him to insisted it was part of his skin condition, which I found odd, seeing as I've been with him since birth and never saw pustules on him before (I think he thought Dane has pustular psoriasis, but I know he doesn't). Anyway, he cultured a couple of areas. One area showed MRSA, one didn't. Dane originally was on Clindamycin the first two times he was infected, but the last few times it showed to be Clindamycin resistant. Linezolid is now the only oral medication left for him (as he's too young to be on Tetracycline...it can cause permanent staining on his second teeth), and my husband and I and our older son are all allergic to Septra, so we don't even want to try it on him. The antibiotic does give him instant relief, and the pustules do disappear, but they seem to come back shortly after finishing his medication. The strange thing is that just like you, even if we're all MRSA free, little bite looking itchy spots can still pop up on us. We dab them with bleachwater and they go away, which tells us it is infection. It's very odd.

Curtis, I will look into the products you mentioned. We have used Bactroban in the nose, as well. As of late, the derm recommended putting bleach water in our noses and that's where I draw the line. That seems so unsafe. We've also tried something called Hibaclens (an antimicrobial surgeon scrub) for cleansing his skin, in addition to all of the antibiotics I mentioned above. I don't know if we can find the ones you mentioned above over here, but I'll definitely look into it. Dane has been off of the antibiotic for 1 week. I noticed one cystic looking bump on the back of his head and one in his diaper area. I'll see if some of the above mentioned techniques and products help. Thanks again for responding. I'll let you know how it goes.

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#13854 - 04/19/07 03:06 AM Re: MRSA infections
graciesmom Offline
Member

Registered: 02/10/06
Posts: 155
Loc: orange park, florida,usa
When Grace was born she got an infection (ORSA)while staying in the nicu. The infection got into her blood causing her to become septic. She was three weeks old and had to have spinal taps done as well as all kinds of other tests. To make the long story short, she had a picc line where she recieved 14 days of vancomyacin. We had to apply bactaban to the white bumps on her skin and give her baths with bleach in it. We also had to put bactroban in her nose for a week and eventually do it to our entire family. I think we battled ORSA for the first year of Gracie's life. It seemed that any time grace had a diaper rash or any kind of skin break down the infection went wild. The bumps would appear and the dr. would put her back on antibiotics. She is doing better now (19 months old) but she still gets the occasional "white bump" that will not go away...I just treat it with bactoban and it slowly goes away. If I remember correctly, the dr. told me that MRSA/ORSA stays with the patient (they can be a carrier) for around five years. I think the MRSA/ORSA is just very resistant to many things and hard to get rid of. I know it's so frustrating, You have skin problems to take care of and to top it off you have to deal with a skin infection. I remember antibiotics would clear the infection up and as soon as she got off of them the infection would come right back. At one point I remember using silvadine cream, it's like bactroban but stronger. I think we used it just to change things up because we were using so much bactroban...maybe worth asking your dr. about. Also you may try putting bleach in your bath (and your family members)for a few weeks. OH, also antibacteria soap helps to kill the infection. I hope this helps, if you have any questions please feel free to email me. Jennifer

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#13855 - 04/25/07 06:45 PM Re: MRSA infections
CoolCattyMatty Offline
Member

Registered: 06/02/06
Posts: 68
Loc: Corpus Christi, TX, USA
We have recurrent MRSA. We have used oral antibiotics, bleach bath water, skin cream antibiotics. We looked into octenisan, can't seem to locate it - may not be available in the US? We are currently keeping the infection down by using bleachwater bath every other night and washing affected areas with antibiotic soap once during the day. But we are having trouble keeping the infection gone.

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