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#13628 - 03/12/07 10:46 PM New Mom To Website
sarahbug Offline
Member

Registered: 03/12/07
Posts: 54
Loc: Toledo,Ohio,USA
Hello everyone,

My name is Sarah I have a fourteen month old named Zoey and one on the way in May07.
Zoey has CIE the suspect. She was born a collodian baby and the docs originally thought she had harlequin, but thank God she is doing great now!
Anyhow I am excited to get to know you all!

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#13629 - 03/13/07 12:50 PM Re: New Mom To Website
aylasmom Offline
Member

Registered: 05/29/06
Posts: 215
Loc: Waterford ,MI
HI Sarah- My daughter is 10 1/2 months old with CIE (we think) also. We aren't too far away in Michigan- Good Luck with your upcoming arrival- Do you know what you are having??

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#13630 - 03/13/07 02:10 PM Re: New Mom To Website
jds Offline
Member

Registered: 12/23/05
Posts: 432
Loc: Austin, Texas
Congrats on the soon to be new addition to the family. Welcome to the board. You will meet alot of knowledgeable and friendly people on the board. Look forward to getting to know you and your little ones.

------------------
Tammy (caregiver)
1 year old son- lamellar ichthyosis
_________________________
Tammy (caregiver)
******************
toddler son
lamellar ichthyosis

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#13631 - 03/13/07 02:15 PM Re: New Mom To Website
Hearsay Offline


Member

Registered: 01/16/04
Posts: 1449
Loc: Richmond, VA, USA
Welcome, Sarah!

I have 2 boys affected with some sort of EHK, age 4 and 15mo, and an unaffected daughter who is almost 3.

We're from Cleveland, but live in Chicago now, so we make the run past Toledo every 2-3 months or so. My brother is attending the medical school there, too. Maybe we should meet up sometime.

I'm glad you found the board!

Jennifer
_________________________
Jennifer
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.


email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"

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#13632 - 03/20/07 12:45 PM Re: New Mom To Website
ANARONNISMOM Offline
Member

Registered: 03/19/07
Posts: 38
Loc: north providence, Rhode Island...
Quote:
Originally posted by sarahbug:
Hello everyone,

My name is Sarah I have a fourteen month old named Zoey and one on the way in May07.
Zoey has CIE the suspect. She was born a collodian baby and the docs originally thought she had harlequin, but thank God she is doing great now!
Anyhow I am excited to get to know you all!
Hi my name is julie and I am new her also . welcome I have a 5 year old daughter with CIE. Her name is Ana

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