I have 2 boys affected with some sort of EHK, age 4 and 15mo, and an unaffected daughter who is almost 3.
We're from Cleveland, but live in Chicago now, so we make the run past Toledo every 2-3 months or so. My brother is attending the medical school there, too. Maybe we should meet up sometime.
I'm glad you found the board!
Ichthyosis-en-Confetti Type 2
Husband, Nathan - 10, Elliot - 7, Oliver - 4, all affected.
I also have an unaffected daughter, age 8.
email: jennifer at confettiskin dot com
facebook - find me on "ichthyosis mommy spot" or "friends of ichthyosis"