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#13485 - 02/11/07 08:38 PM Re: Blood types-please post
Evan's Mommy Offline
Member

Registered: 08/11/05
Posts: 165
Loc: Portland, ME 04106
Non-Affected Dad is A+
Non-Affected Mom is A+
Evan (palmar plantar EHK) is A-.

Please keep us posted as to your findings.

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#13486 - 02/11/07 10:55 PM Re: Blood types-please post
CShell Offline
Member

Registered: 11/10/05
Posts: 1193
Loc: Fort Meade, MD
My daughter has Netherton's Syndrome, I'm actually not sure of her blood type. I'm unaffected by have the recessive gene, and I'm O+. My husband also is unaffected with the recessive gene and is A+, I believe.
_________________________
Courtney
Mom to Julia

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#13487 - 02/12/07 08:43 AM Re: Blood types-please post
momtojesse Offline
Member

Registered: 10/12/04
Posts: 32
Quote:
Originally posted by mymegan:
My aim certainly wasn't to ruffle feathers. A simple question, for the blood types of the parents of children with ichthyosis. For anyone to think that the alleles have nothing to do with ichthyosis, clearly has a very limited background in biology. I wasn't asking if blood had anything to do with it. I was asking for types. I have had a LOT of research done on this, and I am so close to a cure. An actual cure.... not lotions, not accutane, not any of the witch-doctor mumbo jumbo that the self-appointed experts think is best, but an actual cure. I am not doing it for the money. I am not doing it for the attention. I am doing it for my daughter. Years ago... it was proven that the skin develops as a defense mechanism. The mother isn't fully aborting the child, but their is a genetic opposition. I would ask for only intelligent responses. I am not on here, because I am a bored house-husband. If you want to help, help! If you want to be ignorant, talk to someone else... you really shouldn't be talking with me.


Just for the game & fair play... I will start by providing you with the following information.
I am the female carrier for x-linked Ichthyosis.
I am AB+
I am a mother of 3 (1 daughter & 2 boys)
I have only one affected son.
My daughters father was AB+ as well. However, he is is not the father of my sons.
In x-linked it is rare that the "fathers" blood type will be an issue.
Moving on....
you said..
(( For anyone to think that the alleles have nothing to do with ichthyosis, clearly has a very limited background in biology.))
????????????????????????????????????
I apologize in advance if I am too blunt, but I feel the need..
my point.
someone that eludes that they are far more educated, infers that they might be a genetic biologist...speaks of people that have replied to this post as..
"Ignorant??"
Umm... O.K..... Please give us all details of your "CURE" that will prevent Ichthyosis from developing in the womb?????
No offence.... But "Doctor Speak" if far more coherant than your post.

I also wish to say that I am the proud mom of a well adjusted pre-teen son that is PROUD of his special skin.. It took some time for him to be "comfortable in his own skin"
I am happy to say that he takes pride in his individuality & thinks it is Cool that only he & his GPaw are 1 in a million..
I also must add..
Much to my dismay...
He is quite popular with the girls..
Is very athletic & his skin is as bad as it gets..
(that time of year)

So mymegan,
Could you please list your credentials??
I would love to continue this debate!!
YOU Posted...

""""My aim certainly wasn't to ruffle feathers. A simple question, for the blood types of the parents of children with ichthyosis. For anyone to think that the alleles have nothing to do with ichthyosis, clearly has a very limited background in biology. I wasn't asking if blood had anything to do with it. I was asking for types. I have had a LOT of research done on this, and I am so close to a cure. An actual cure.... not lotions, not accutane, not any of the witch-doctor mumbo jumbo that the self-appointed experts think is best, but an actual cure. I am not doing it for the money. I am not doing it for the attention. I am doing it for my daughter. Years ago... it was proven that the skin develops as a defense mechanism. The mother isn't fully aborting the child, but their is a genetic opposition. I would ask for only intelligent responses. I am not on here, because I am a bored house-husband. If you want to help, help! If you want to be ignorant, talk to someone else... you really shouldn't be talking with me."""""

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#13488 - 02/13/07 11:55 AM Re: Blood types-please post
swebblie Offline
Member

Registered: 11/08/06
Posts: 48
Loc: Wollongong, Australia
I too would be very interested in your research. Please enlighten us to what you have discovered.

Sarah.

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