Thanks to today's endoscopy, it appears that Lucia(NS) has major inflammation of her oesophagus and is obviously having an allergic reaction, apparently! It is usually associated with food and the treatment is an 'elemental formula', which we are already currently using(and have been for over 1yr), smelly Elecare! She doesn't eat anything orally either, so it's all a bit of a mystery....
Has anyone else experienced the above and if so, can you share your treatments?
We had susupected that this wasn't NS related, but now the gastro believes there to be a major link, despite being very little written about the 2 conditions together.
Any thoughts or advice would be much appreciated, thanks.