Originally posted by Tonettepeterson:
Our 2 year old son has EHK as well as myself, and we were turned down once (even when he had cancer last year...) we didn't try again, but any information anyone has, would be greatly appreciated!!! Thank you!

Tonette they love to turn people down its always worth appealing.
I was very much "lucky" i didnt have the stress of being turnt down but i have been told by parents of children worse of then my son they were turnt down - its a rollercoaster and the only way forward is to keep appealing - also keep a photostat of any information you provide as you sometimes have to reclaim in 2 years - although once again i got "lucky" my son was awarded one lifelong.