Page 1 of 2 1 2 >
Topic Options
#13222 - 01/02/07 05:33 PM delivery and ichthyosis- HELP!!!!!!
Masonsmom Offline
Junior Member

Registered: 01/02/07
Posts: 3
Loc: San Antonio, TX, USA
Hello, I am new to the board and need help with information on delivery and ichthyosis.
A few months ago a genetics specialist diagnosed my unborn baby with x-linked ichthyosis. I went for a series of test and ultrasounds and then they sent all of my information to my OB. The specialist told me that for pregnant women that you would not go into labor that I would have to be induced.
Well, now that I am 38 weeks my OB is changing her information. She told me a few weeks ago that my placenta should still be the same from my other two children (who are girls). I have repeatedly explained to her that I was 2 weeks past due with my first and still was dilating to a 1 when I was having contractions and went to the hospital. I believe that when the nurse checked me she might have broken my water. And with my second child, I had to be induced two weeks early because we had to move.
Most of the information that I have come across, the women has had c-sections. If any one can help me, I would greatly appreciate it. -amy

Questions:
1. Do you start to dilate? (I am almost a one now, but will it go past that?)
2. Will you go into labor or do you have to be induced?
3. Is there any other information I should know?

Top
#13223 - 01/02/07 06:24 PM Re: delivery and ichthyosis- HELP!!!!!!
jrmiss86 Offline
Member

Registered: 06/07/05
Posts: 378
Loc: Marlton, NJ, USA
Hello

Welcome to the board.

My son is almost 2 and has x-linked icthyosis. I can only give you my experience, but from what I have heard from other people it is just as likely that you will have a normal non-eventful labor as it is that you will have failure to progress.

I went into labor with my son (Alex) three days before my due date. I went into labor at about 4 in the morning. For me it was all back labor, but I have been told that is was because of his position, not the icthyosis. By 6 that morning the contractions we only a few min. apart and we went to the hospital. I was 2 cm dialated at that time. By about 1-2 in the afternoon I was still only 4 cm dialated so the dr. gave me pitossin to try to speed things along. For me the pitossin seemed to be working and I believe that I got up to 6cm by 3 p.m. Unfortunatly for us, Alex had a bad reaction to the epidural that I got and his heart rate kept dropping with each contraction, so I went in for an emercengy c-section.

My two younger brothers also have x-linked and my mother told me that the pitossin did not work for her and never got past 3-4 cm with each boy.

From what I have learned and heard from other people it can be very different for each person. I believe that you will go into labor naturally(If I am wrong, please somebody correct me.)

If you have any other questions please feel free to contact me. My e-mail should be in my profile. Congrats on the new baby. We are also expecting a new baby in late March. I hope all goes well in the next few weeks for you. Boys are wonderful to have.

Heather
_________________________
Heather
Mom to:
Alex (xli and Kallmans - 2/3/05)
Liz (3/16/07)

Top
#13224 - 01/02/07 09:59 PM Re: delivery and ichthyosis- HELP!!!!!!
skittles71 Offline
Member

Registered: 01/16/06
Posts: 283
Loc: Catawba North carolina
Hi I have 2 boys with x-linked with my first son I had no trouble at all. Matter of fact i did'nt even know he had x-linked until he was about 3 mths. I went into labor the day before my due date I went to the hosiptal and they sent me home cause I was'nt but 1 cm. Well around 4:00 am I was waking my husband up to take me to the hospial which was about 35 mins away. We got on the road and my mother n law had to go 80 cause my contractions was 2 mins apart. Well we finally made it to the hospital at 4:50 am and I had Cameron at 5:01 am. And had him right on my due date with no problems. Then with my 2nd boy i started contracting about 2 weeks before his due date and it was such a pain that they finally brought me in to induce. They induced me at 11:00 a.m with this pill they insert inside you. And Jordan was born at 1:20 p.m. So really I did'nt have any trouble with him either. My daughter i had in between them it was really ok with her also. They used the pill again and done it at 1:00 p.m and I had her by 3:20 p.m . I enjoyed all 3 of my child births. Only had the epidural with my last child and had nothing with the first 2 kids. For one they came to fast and did'nt have time to get anything. And I wanted to see what it was like to have a child with no pain. And I told the doctor since I did'nt plan Jordan I wanted to have that experince to see what it was like to have no pain. The reason I say I did'nt plan him is because when my daughter was 6 weeks old I had my tubles clamped and 13 mths later here comes Jordan. So having your tubes tied dont always work. I have living proof of that...lol But other then worrying about anything I would'nt. When you go to have him he will look like a normal baby. You should'nt notice anything until hes about 1 mth or maybe sooner. His skin will just peel and peel specially on the heels. Thats where both my boys had there issues. If you need any help with anything feel free to email me. My boys are 15 yrs and soon to be 9 yrs. I can try to help the best I can. Welcome to the board if you need anything theres many here that can help.

Kathy J.

Top
#13225 - 01/02/07 10:30 PM Re: delivery and ichthyosis- HELP!!!!!!
Masonsmom Offline
Junior Member

Registered: 01/02/07
Posts: 3
Loc: San Antonio, TX, USA
Thank you Heather and Kathy for your replies. You have helped me relax a little more. I am a little frustrated with my OB because she has made no effort to try to educate herself on Ichthyosis at all. This all has been a learning experience for me. The odd thing is, is that when I was diagnosed, they suggested that my nephew get checked (the only male in our family) and it turned out that he in fact did have ichthyosis. His pediatrician had always treated him as having exama.
I have contacted my pediatrician and she has made it sound as if it is no big deal. But, I like to be prepared. So, thank you once again. –amy

Top
#13226 - 01/02/07 11:09 PM Re: delivery and ichthyosis- HELP!!!!!!
jrmiss86 Offline
Member

Registered: 06/07/05
Posts: 378
Loc: Marlton, NJ, USA
we have had relativly no problems with the icthyosis at all. His skin is dry, but as long as we keep up with the lotion every day in the winter he does great. In the summer I do not even really think about it, his sunscrean usually does the trick.

good luck with the baby.

Heather
_________________________
Heather
Mom to:
Alex (xli and Kallmans - 2/3/05)
Liz (3/16/07)

Top
#13227 - 01/02/07 11:13 PM Re: delivery and ichthyosis- HELP!!!!!!
Masonsmom Offline
Junior Member

Registered: 01/02/07
Posts: 3
Loc: San Antonio, TX, USA
Heather, did you worry about the types of baby lotion that you used?

Top
#13228 - 01/02/07 11:26 PM Re: delivery and ichthyosis- HELP!!!!!!
skittles71 Offline
Member

Registered: 01/16/06
Posts: 283
Loc: Catawba North carolina
I wish I could say that my younger son did'nt have any troubles with his skin. But that poor child suffers in the winter and summer. The winter his skin will crack open and bleed so bad. And in the summer we have to keep him inside most of the time due to him getting 1st and 2nd degree sunburn and not being able to sweat..his derm. said he had a sweat glad disfunction. Its just alot differnt with him then his older brother. When his older brother was his age he stayed outside all the time and has'nt really had trouble at all. He actually went to work with his dad in the summer time. And he did out side work with him. So I guess each child is different. My favorite lotion I used when they was babies is the Johnson & Johnson. I still get it for Jordan cause he said it does'nt burn him. I would stay away from the acid lotions until he gets a little older.

Top
#13229 - 01/03/07 06:03 AM Re: delivery and ichthyosis- HELP!!!!!!
LauraAnn Offline
Member

Registered: 04/01/04
Posts: 220
Loc: Chicago, IL, USA
Hi masonsmom!
I have 2 boys rxli, and both we had a relatively "normal" labor, although, with both, I was MUCH slower to progress than with my girls (they are older), and they both underwent stress during the labor....but we ended up having "normal" yet a bit scary, deliveries. Both boys were fine, but it's just good to be prepared ahead of time, that, yes, things could be a bit risky, but also, things could go very smoothly for you. Because I had something to compare it to (having 2 absolutely beautiful labors with my 2 girls), I know that the rxli effected my labor negatively with my boys - but everything was still fine in the end.

Lotions: I always used fragrance free stuff with my boys, Cetaphil lotion is great - light, mild and fragrance free - twice a day at least. I have found that lotions that contain glycerin have more "staying power". Some kids do fine with lotioins that have fragrance, though. Definitely get something that will add deep moisture and work for long periods of time, and definitely start lotioning your boy right away (most docs will advise NOT using lotion on "normal" newborn skin). I made the mistake (not realizing the my youngest was rxli at the time), of letting my little rxli guy suffer for 3 weeks, until his skin was cracking so bad - duh! That he probably needed some lotion, no matter what advice was given to the contrary!~

Good luck to you. Do lots of reading here, this board is a goldmine of info!
-LauraAnn
_________________________
- - - - - - - - -
*Laura
Mom to: Joshua (9yrs) and Matthew (4yrs) both affected with recessive x-linked ichthyosis

Top
#13230 - 01/03/07 07:09 PM Re: delivery and ichthyosis- HELP!!!!!!
jrmiss86 Offline
Member

Registered: 06/07/05
Posts: 378
Loc: Marlton, NJ, USA
we have found that aveeno baby works wonders for us, we especially like the soothing relief moisture cream, and the soothing relief creamy wash, I find both in the baby section, unless it is really cold out I only have to put it on him once a day, usually right after his bath at night, but if his skin is doing worse for some reason we use it twice a day. I never really worried about what kind of lotion to use, as long as it seemed to work for him. I know from my brothers that what we use on Alex doesn't work on them, so they use something different. When they were younger my mom used Eucerin cream for them and I belive that worked for them.

Hope that helps

Heather
_________________________
Heather
Mom to:
Alex (xli and Kallmans - 2/3/05)
Liz (3/16/07)

Top
#13231 - 01/03/07 11:34 PM Re: delivery and ichthyosis- HELP!!!!!!
swebblie Offline
Member

Registered: 11/08/06
Posts: 48
Loc: Wollongong, Australia
Hi Masonsmom, Like you I was concerned. My sons labor, which was my first, was a little weird, the midwives kept telling me that I wasn't in labour as I wasn't progressing. It took about 24 hours for me to go from 1cm to 4cms. They decided to induce me with the drip but couldn't get it in my arm, they tried to break my waters twice but couldn't.
Then suddenly things got going and it took me 3 hours to go from 4cms to the birth of my son. This shocked the midwives, they still thought I wasn't in labor at all, and they were completely unprepared.

With my daughters birth recently things were very similar, they were both 5 days overdue, I took 9 hours to go from 1cm to 4cms, the midwives wouldn't believe me when I said that the last bit goes really fast for me. It took me 2 hours to go from 4cm to birth and I gave birth during the shift change of the midwives. They had kept saying "There is no way, at this rate, that you will give birth with us"( I had spent 5 hours in hospital and only dilated 2cms). My husband told them not to be so sure.
So with midwives that really had no clue and didn't want to listen to me, I was lucky to have completely normal births with only bad tears because of the birth being so fast.
Hope things go well for you Masonsmom. I just wanted to let you know that a normal(I hate the word normal, it is so judgmental) birth is possible, not all x-linked babies are c-sections.
swebblie

Top
Page 1 of 2 1 2 >

Moderator:  marcsmom, Sideshow_bob 

Copyright 2012 Ichthyosis Information