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#13084 - 11/20/06 03:42 AM 'Celebrate Me!' - a FREE children's book on skin disorders
CShell Offline
Member

Registered: 11/10/05
Posts: 1193
Loc: Fort Meade, MD
I just ordered one, and a friend of mine gave me the link:
http://www.neostrata.com/coverblend/cbd_cme_req.asp

It's a book for kids who have skin disorders to help celebrate and accept that their skin looks different. [img]http://www.ichthyosis.com/ubb/smile.gif[/img] And it's free!
_________________________
Courtney
Mom to Julia

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#13085 - 11/23/06 04:19 AM Re: 'Celebrate Me!' - a FREE children's book on skin disorders
rodkarbrown Offline
Member

Registered: 05/23/05
Posts: 148
Loc: Rochelle IL USA
Thanks Courtney!!! I just ordered one. Kaylee always asks why her skin is different and that she has stupid skin. I feel so bad for her. We did watch the show tonight on Discovery Channel and I think she liked seeing kids like her, although, they are much worse than Kaylee is.

Happy Thanksgiving!
Karla
_________________________
Karla Mom to twin girls from Haiti, Kaylee (Netherton Syndrome) Kylee not affected.

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#13086 - 11/23/06 10:29 PM Re: 'Celebrate Me!' - a FREE children's book on skin disorders
jds Offline
Member

Registered: 12/23/05
Posts: 432
Loc: Austin, Texas
Let us know if you receive the book. I ordered one for my little one about 2 weeks after he was born. He will be a year on Monday and I still have never received the book.
_________________________
Tammy (caregiver)
******************
toddler son
lamellar ichthyosis

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#13087 - 11/27/06 01:22 PM Re: 'Celebrate Me!' - a FREE children's book on skin disorders
pauline5 Offline
Member

Registered: 01/06/02
Posts: 913
Loc: Melbourne, Australia
My goodness, how beautiful really bought a smile to my face...what a fantastic idea Guys...such a wonderful thing for the kids to have...wished it had have been around when i was little...

hehehe [img]http://www.ichthyosis.com/ubb/smile.gif[/img] Pauline

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#13088 - 12/03/06 01:58 AM Re: 'Celebrate Me!' - a FREE children's book on skin disorders
Lisa71 Offline
Member

Registered: 10/20/04
Posts: 23
Loc: Westlake, OH United States
Thank you for the link...I just ordered one for Emma. She is just starting (at 2 1/2) to notice her skin is different from others.....Lisa

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