We meet with this nurse every couple of weeks here in Texas, who's supposed to be an advocate for us and help with anything we need - like getting in touch with our early intervention program, or insurance problems, whatever.
And first off - this base that we're at is TINY. Because it's just a training base. Anyway, she said last year she was working with this pregnant woman, who was having genetic testing done, and her child tested positive for Netherton's. So this nurse did aaaaall this research on Netherton's Syndrome during the pregnancy to be prepared. When the baby was born, it turned out she was just a carrier, wasn't effected.
I just thought that was weird, because here we are a year later with a kid with NS, and are lucky enough to have a nurse who understands at least a minimal amount about the disorder! How lucky is that?! Even more proof that everything happens for a reason [img]http://www.ichthyosis.com/ubb/smile.gif