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#1295 - 09/18/02 01:22 PM Dr. Milstone info.?
Anonymous
Unregistered


Does anyone have any contact info for me for Dr. Milstone. I have a call into F.I.R.S.T. but I'm afraid they won't be able to get ahold of me due to poor cell reception at my jobsite. By the time I can get to a "real" phone at lunchtime they are already gone for the day(west coast/east coast time difference). Dr. Elias told me that Dr. Milstone had done the most research on accutane side effects on the joints and I have to do something about mine now before I end up in a wheel chair. Any help would be appreciated.
Keith.

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#1296 - 09/18/02 01:28 PM Re: Dr. Milstone info.?
pauline5 Offline
Member

Registered: 01/06/02
Posts: 913
Loc: Melbourne, Australia
I have no information naturally.....but BLOODY DRUGS

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#1297 - 09/20/02 05:01 AM Re: Dr. Milstone info.?
AdamsDad Offline
Member

Registered: 04/01/02
Posts: 42
Loc: Atlanta, GA USA
Hey Keith --
Believe it or not, I might be able to help you here. Dr. Milstone is at Yale University. The Dept. of Dermatology's main number is (203)785-4092 (which is their business office). The office administrator is Nancy Scanlon. You can also e-mail her at nancy.scanlon@yale.edu. Hopefully she can point you in the right direction to get more information. Good Luck. Hope all is well with you and Bev.
Regards,
Mark Klafter

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#1298 - 09/22/02 04:11 PM Re: Dr. Milstone info.?
Anonymous
Unregistered


Hey Mark,
Thanks alot, actually F.I.R.S.T got through to me right after I posted. They wouldn't give me his email address, said it was for physicians only. They gave me a phone number and address for him at Yale. The first thing I thought was that I was gonna get a secretary who would say "can I take a message". Imagine my surprise when Dr. Milstone answered the phone himself, "hello!". I was so shocked I had to ask him if it was really him. I think F.I.R.S.T. may have given me his cell# accidently but he didn't seem to mind. Dr. Milstone did explain to me that what he discovered about accutane side effects was that the tendons are effected also if not solely. "Calcification" of the tendons he called it. Now that I have heard this it seems to make more sense as to why my pain has started working its way dowen from my hip area to my femer to my knee to my shin. I'm not sure what "fixing" this will entail but I am going to the doc tomorrow armed with all my info from Dr. Milstone. I know this is going to be a long process but I figure to be an expert on accutane side effects by the time this is over. I'll post anything I learn on the board for anyone who would like to know more also. Thanks for your help Mark, I appreciate it.
Keith.

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#1299 - 09/24/02 03:13 AM Re: Dr. Milstone info.?
AdamsDad Offline
Member

Registered: 04/01/02
Posts: 42
Loc: Atlanta, GA USA
Well....with your expertise in hand, I guess you'll be a featured guest lecturer at the KC'04 conference! (ha, ha)

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#1300 - 09/24/02 01:23 PM Re: Dr. Milstone info.?
Anonymous
Unregistered


Well,
I went and saw my doc, he's not an orthopedist but he's a great internist. I explained everything to him, the accutane, the previous diagnosis of arthritis that my dermatologist said no it wasn't arthritis, it's from accutane. I had never seen this doctor for anything other then flu, colds etc. He asked me to take my clothes off, that was when i asked him if he had ever seen Ichthyosis before? He said yes, a few times. When I saw his pupils dilate I knew he hadn't seen anything very severe before. Then he asked me how to spell ichthyosis. Anyway, after all the xrays were done he told me, you have arthritis and there is no cartiledge left in your hip socket. I realized he was not a specialist and that I was going to get a referall to an orthaopedist anyway. He gave me a bunch of prescription antinflamatories and a prescription for a pain killer that works "mentally"???? I've decided that before i go to the next doctor i am going to ask for consultation first, try and get UCLA, the orthaopedist, and Dr. Millstone all in contact with each other so that someone doesn't want to just cut into me and not take care of the real problem. Bev says I just want it to be something more serious then arthritis because it is to easy to explain. I have seen people with terrible arthritis and know that is nothing to be taken lightly. I just have this feeling that everyone is jumping at the most obvious conclusion and not looking at what is causing it. At least the antinflamatories are helping with the pain for now. Don't schedule me for any lectures at the conference just yet.
Keith.

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