Becky, the aquaphor issue is another reason why I am inclined to change ped-derm. WHen I told my son's derm that I would like
to switch to the original formula aquaphor, he told me that he recommends nothing else but the healing ointment and that he knows of no other formulation besides that. End of discussion. I would really want to get my hands on that free aquaphor original if I could.
It is just so difficult to talk to our ped-derm. One of his minions (residents) would come in and talk to us, we can tell him what we need to say, he writes it down, goes out and briefs his boss,
The Derm then comes in, talks rather fast, sometimes he won't even pause to listen to what I have to say - then leaves the room leaving the resident to write the Rx and other instructions. Given that my baby would be seeing a pediatric derm possibly throughout his entire life, I just wish we have someone we trust and would work hand in hand with us.
Tammy, our immunologist prescribed Neocate and Ele-Care to supplement Nate's feeding. The problem is, he wouldn't take the bottle. Two days ago though, he started taking the formula in plain glass (must make him feel like a big guy!). It pleases me that he takes about 4 ounces of formula a day (in addition to breastmilk). He doesn't like the taste of Neocate though. I tried it myself and its terrible [img]http://www.ichthyosis.com/ubb/smile.gif
Wendy, we've ordered Robathol. Thank you for the recommendation. We have yet to use it though, it just arrived today. I also ordered Free & Clear bath. We've been using nothing but Cethaphil on him.
Question. How do you deal with the scaly scalp? Before the diagnosis, I used to use Derma-Smoothe on Nate. Now I only use baby oil. I just pick on his scalp most of the time [img]http://www.ichthyosis.com/ubb/smile.gif
my baby is one in a million.